Click here to access Alzheimer's Advocacy Reporting & Trends (AART), our online reporting tool for interactions with members of Congress.
Please sign up online so we can contact you by e-mail to let you know about important state or federal action items, alerts, activities and events that need the support of your elected representatives.
Nevada State Advocacy Day:
March 16, 2015 | State Legislative Building, 401 South Carson Street, Carson City, NV 89701
More information posted when available.
Contact: Jacob Harmon, firstname.lastname@example.org
National Advocacy Forum:
March 22-25, 2015 | Washington Marriott Wardman Park, Washington, D.C.
Gather with advocates from all fifty states to learn about and advocate with Members of Congress for a world without Alzheimer’s. The first two days of the Forum are spent learning from speakers including government officials and senior policy staffers. The last day of the Forum is spent meeting in teams with members of Congress and their staff, where we emphasize that Alzheimer's cannot wait. 2015 Forum registration information will be posted when available. A limited number of scholarships are available through the chapter to help offset travel expenses.
To apply, contact your Regional policy lead or email@example.com.
California State Advocacy Day:
April 29, 2015 | Sacramento
Each year in Sacramento the Alzheimer’s Association holds an Advocacy Day. This event is crucial to advancing our legislative efforts at the state level. Volunteer advocates from throughout California gather at the State Capitol and meet with members of the California legislature to ensure that our policy priorities are addressed. All are welcome to participate in this event, as there is no tool more powerful than your personal stories.
Registration information will be posted when available.
What We’re Working On
Alzheimer’s is the most expensive disease in America, with costs set to skyrocket in the years ahead. For Medicare and Medicaid, treatments equal savings. In 2014 the total cost of Alzheimer’s will be $214 billion, including $150 billion to Medicare and Medicaid. Meanwhile, only 0.25% of this total has been committed to Alzheimer’s research, the only path to reducing this cost.
This is why we are advocating at the state and national levels for critical research funding to find a cure, and public policies to improve the quality of care for those with the disease and support for their caregivers.
>> Find out who represents you in Congress
Our 2014 Federal Priorities:
To achieve meaningful progress, states must tackle Alzheimer's not only as an aging issue, but also as a public health crisis. Alzheimer's disease is a pivotal public health battle, and state governments stand on the front line. The Alzheimer's Association calls on state policymakers to take bold action to confront this epidemic, focusing on four key priorities:
>> Find out who represents you in the California Legislature
- Coordinated Care Initiative or
Cal MediConnect: We are working closely
with the California Health and Human Services Agency to ensure that all managed care plans in all 8 of the participating counties in Cal MediConnect have at least one
care coordination staff trained in dementia care management. This is part of a major systems change pilot that we and our L.A. Chapter are participating with the State on. Here is a summary of our role in this project.
Read the state fact sheet here.
California’s five Alzheimer’s Association chapters work together to advance statewide public policy goals through the California Council. 2014 has been a thoroughly productive year for the Alzheimer's Association in California.
Here is our Year End Legislative Report outlining the successes we have been able to implement in California.
- State Plan: In 2011, the Alzheimer’s Association and California Department of Health and Human Services released the California State Plan for Alzheimer’s Disease, which includes recommendations to California policymakers to help California prepare for the coming Alzheimer’s epidemic and improve conditions for people with the disease and their families. The components of the State Plan are continuously reviewed by the California Council, and our California legislative priorities are guided by the plan’s key recommendations.
>> Find out who represents you in the Nevada Legislature
Read the state fact sheet here.
- State Plan: In 2013, the Nevada Legislative Committee on Health Care released the Nevada State Plan to Address Alzheimer’s Disease, which includes 21 recommendations to Nevada policymakers to help Nevada prepare for the coming Alzheimer’s epidemic and improve conditions for people with the disease and their families. A state Task Force on Alzheimer’s Disease is currently meeting to discuss options for implementing those recommendations; for more information about the Task Force see http://adsd.nv.gov/Boards/TaskForceAlz/TFAD .
Here is our Year End Legislative Report outlining the successes we have been able to implement in Nevada.
Back to top
Facts and Figures
- Read more about the facts and figures here.
- The Alzheimer's Association compiles national and state-level data based on vital statistics and finance data; this year's report is available here. State data can be found on page 20 of this report.
- More than 5 million Americans live with Alzheimer's disease, the nation's sixth leading cause of death. Of these, two-thirds are women.
- California developed county-level data in 2009 that should still be valid, which you can quote for policy needs; this is available here. Scroll down and click on Individual County Data.
Data on Alzheimer's in your state and county
You can also estimate the number of people in your county with Alzheimer's by using the 2010 US Census data on the number of people in your county 65+. Start by selecting your state on the map, then select your county at the top left, then click Browse Data Sets at the top right, then select Demographic Profile. Scroll down to see the total number of residents 65+. Coupled with the fact that 1 in 9 Americans 65+ has Alzheimer’s, this will give you a rough estimate of the number of people with the disease in your county.
Volunteer to advocate for a world without Alzheimer's
What does an advocacy volunteer do?
By becoming an advocacy volunteer, you can play a vital role in our efforts to strengthen federal, state and local policy makers’ commitment to end this devastating disease. Advocacy volunteers play an important role in improving the quality of care and quality of life for people with Alzheimer’s disease and their families by working to improve dementia care and services; improve access to community-based care; improve quality care in residential settings; and expand funding for research and public programs serving people with dementia.
Listen to what our advocacy volunteers have to say about their experiences participating in advocacy activities:
Most of our regional offices have Policy Committees, teams of volunteer advocates who advise and support regional staff in advocating for local, state and national policy priorities.
Alzheimer’s Legislative Teams and Ambassadors are grassroots volunteers selected to serve as the Association’s primary messengers for their member of Congress. They work directly with Chapter staff to build relationships with their Member of Congress through personal contacts, meetings and other activities.
Learn more about the Alzheimer's Association's Advocacy Volunteer Program
>> Read blog posts by Karen, one of our Advocacy volunteers.
>> Read blog posts by Sherrie, one of our Advocacy volunteers.
On July 8, 2014 Representative John Garamendi joined with Representatives Maxine Waters and Peter Roskam (IL) to address the financial and emotional impact of Alzheimer's disease and the need for greater research funding. Watch their full exchange here, which begins at approximately 1:49.00.
Senator Ellen M. Corbett (D - East Bay) has featured in a flyer for us to help raise awareness.
Early Stage Involvement:
Individuals in the early stage of Alzheimer's disease are among our most powerful, influential advocates. A person who is living with Alzheimer's and chooses to raise their voice against the disease not only sends a powerful message to legislators at the state and federal level, but helps remove stigma and negative assumptions associated with Alzheimer's disease.
If you are interested in becoming an advocacy volunteer, please contact Jessica Rothhaar at firstname.lastname@example.org or 925.284.7942 ext. 1205.