2021 Facebook Post On Lewy Body Dementia Caregivers Support Group-I got 47 responses helping me out!
Please tell me we are doing the rightthing. My heart is breaking. Last Thursday my dad fell and wanted to go to theer.
--He's been having worse and worsedementia symptoms and worsening parkinsonianism. We have been in contact with aging and disability resource center, starting toget things moving. He went to the neurologist and she prescribed carbidopa lebidopa...
And that started dad having worse, scaryhallucinations, and just a general decline. Then even after mom stopped givinghim the med, those hallucinations and decline continued.--Then with going to the er he completely forgot who I was and forgot who mymom was and was not happy with my mom. He has beenincreasingly getting suspicious andparanoid, and since my mom is the one there with him, it was all towards her.They were going to discharge him and I begged the doctor not to.
Iwas so worried about how he would treat us when we got home and figured wewould end up right back at the er. They kept him for the night We went in the next day andwere told he will not be going home again, was incapacitated, POA activated,Lewy Body dementia, he is not safe to himself orothers, etc. That morning he didn't know who we were either.Social worker got us into a memory care facility, which we got him toMonday afternoon. Now dad is having major anxiety, not sleeping, constantlypacing even all night, falling from dizziness,falling from exhaustion. It's just breaking my heart. The last two mornings we actually had pretty good visits with him. Wewere able to redirect him saying he is there so he can get stronger, andbecause we didn't want him to get hurt at home if he falls. But nowhe is fixated on how are we paying for this, can he go home, and he is feelingguilty because he told my mom today that he left her outthere, (at their hobby farm) by herself. He asked mom today if she thought allthe people there would be ok if he gave her akiss. Omg I just can't. I know he needs to be there because there is no waywith all of his falls he could ever be at home, and hisbehaviors were increasingly unpredictable. But with how difficult thistransition is...I am doubting. I am so sad thinking ofhow scared he must be being somewhere he doesn't know, doesn't know where weare, orhow scary it is not recognizing anything. But I feel he was that way at home every once in a while too. My heart is just so sad.
December 31st, 2021 Facebook Post Funeral for Grandma Ruth Dittman, Monday,January 3rd Noon at Bakken-Young New Richmond. Visitation one hour prior.
--**For those of you who do not know(apologies in abundance, but please forgive us, it's been a nightmare of ayear), my dad,
David "Dutch", will not bejoining us for grandma's funeral. He has been diagnosed with Lewy Body Dementiaand is in an advanced memory care facility. We do not want to subject him to thestress this event would undoubtedly cause him. Dementia is a very unforgivingand devastating disease, and this year has been the hardest of myfamily's lives**.--
Thank you for your understanding. Andthank you for your condolences, consideration, sympathy and prayers.
**If you are not able to join us inperson for Grandma Ruth's service, there is a link at the bottom of theobituary,
shared below, that you can click on to
bring you to a live stream, and I believeyou can watch the service afterwards as well. **
Love, hugs, and well wishes for all inthis coming new year, and prayers that it will be a better year than 2021!!!
Cheers!! Love you all!!
Following 2 posts are to two separate Lewy Body Dementia Support groups on Facebook
November9th, 2021
Anyoneelse's LO just... lay on the floor?Either goes from standing to just laying down on the floor, or getting
Anyoneelse's LO just... lay on the floor?Either goes from standing to just laying down on the floor, or getting
August 29th, 2021
My dad is having several falls,hallucinations, wandering (into other resident rooms at times), etc.
They are saying now he needs to go to themore specialized part of the facility because oall of these things. Shouldn't they first have someinterventions in place to try to alleviate and redirect him and try these things before they send him tothe next level?? I worked in memory care and we delt witha lot of these behaviors and did a lot of problem solving for each resident. When you are on the family side it is somuch of a different perspective...Thank you for your input
October17th, 2022
Dad took his last breath tonight at 7:47pm. Heis finally at peace. He no longer needs to fight this disease or what it wasdoing to his body. Heaven gained one hell of a guy tonight.
December 28th,2023 Facebook Post
The lastfew weeks I have been really down.Fighting with depression and grief.The last few years have been so hard! It has been so much... here is my purgeof crap!!! Fair warning... it's a long sad scary story.
*Covid- staying home with kids tohelp with schoolwork,etc. The not knowing what was going to happen in the world. The start of mypanic attacks
*Talyn getting so very sick andwaiting to find an answer to why. Pulling her out of school and homeschoolingher because she was so sick and full of anxiety. Getting the diagnosis of EosinophillicEsophagitis and allergies to soy peanuts and tree nuts. Getting through allofthe therapies for anxiety and panic attacks with her, getting her to eat againand then well enough to go back to school.
*Axel dealing with bullies atschool and his horrible eczema on his hands. Him staying home from school forweeks because of how bad his hands were.
*The roof of my Grandmas housecaving in and causing us to realize she couldn't stay home anymore. Trying tofind placement for her. Cleaning out and selling her house, my first home whenI was a baby.
*My dad's quick decent into LewyBody Dementia and all the crap that entailed. That's a story all its own fullof heartbreak, scarytimes,confusion and loss.
*My Grandma dying the day afterChristmas
*My dad's death a year after hisdiagnosis.
*Helping my mom clear out herhouse and selling it, signing her home and my childhood home away on the daybefore my dad's funeral.
*the loss of our pets, Mya,Butters, Ichabod and Arnie.
*My other grandma getting into acar accident Now the decision to have her move to assisted living, and the lossof my third childhood home.
I'm sure there was way morecrap...but these are the highlights. Ughhhh!!!Purge done!!
My dad, Dutch, was diagnosed with Lewy Body Dementia in August of 2021, he was 68 at the time. It was a rough and unexpected journey to get to this diagnosis, and a heartbreaking journey after the diagnosis. Dutch passed away 13 months after this diagnosis. Please help me to raise awareness about Alzheimer's, and money towards education and research, and maybe, someday, a cure!!!
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