My mom has always been my best friend. I've always known I wanted to be a mom because of the mom she's been to me. She has always encouraged me, fought for me and I've never questioned her unwavering love for me. Without pressuring me to have kids, she's talked about her future grand babies for years. She didn't do everything right, of course, but I find myself wanting to recreate the childhood I had for my own kids. I have always wanted my kids to know and love their grandma the way I love my mom. But this terrible, life sucking disease has taken so much from us already. I'm grateful they get to see her face and play with her periodically. But instead of getting to know the woman I've known; they'll only be able to hear the stories I tell them.
With one FDA approved drug available (that my mom doesn't qualify for) to slow the progression of dementia and Alzheimer's there is more hope now than ever that there will be more. Understanding more about the disease will be the key to success in pinpointing treatments and hopefully one day a cure.
If you have been affected by this disease, you have my deepest sympathy and support. I have felt very isolated, confused, heartbroken and angry. I encourage anyone who wants to talk through similar experiences to reach out to me too.
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