In 2014 I received a call from his doctor in Arizona telling me that he could no longer live by his self and that he had chosen to move with me. So we went and packed him up and moved him to our house. In 2019 we made the transition to a memory care as he progressed with his needs plus having company would be better than sitting home during the day. 2019 was a hard year and being a good advocate for him was hard. I was spoken down to by doctors and I got threatened by aps, all of them wanted him drugged up. I had two doctors tell me my uncle wouldn’t live to the end of 2019 and I told them both I disagree with you and your wrong because I knew my uncle better. Well folks he did he surpassed that and made it till 2024 until an infection got him poor guy. All the years of battling Dr’s who wanted to chemical restraint him the rest of his life or the caregivers lacking care with compassion made this a hard battle for me because I always believed everyone deserved quality care with dignity and compassion, that was ingrained in me from my early healthcare days and I didn't agree with chemical restraints nor did I agree with being treated like a disease versus a human being. Uncle was his name it was not Dementia. So we had to fight for his rights as people tried to take them away. No, I repeat no family nor individual should have to go through that while already facing this ugly disease. But we were force to so he could have a life with dignity and quality of life. In 2019 we won that battle the judge granted us guardianship versus poa and we moved my uncle into a new place where they loved on him and he was happy again for a while and he even made it through all the Covid ups and downs. We got to see his smiles again and shared laughs with him and hugs plus for a few he had fun with the staff. That is what a good memory care should be like but Covid changed a lot of that and it began to be hard to find a memory care that cared like that. But I continue me to try to have hope as he had lost enough already he shouldn't have needed to be chemical sedated the rest of his life, just for staff to earn a quick buck. I'm sorry but a life is more valuable than the $$$ you make. You can not replace someone's life you can earn $$ some where else. So I walk to continue to bring awareness and in hope one day we will have a cure so other families or individuals don’t suffer like Uncle did. I hate Dementia and I push on to try to help others from what I have learned but also because I just really really hope we can find a cure.
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