My mom was diagnosed with Lewy Body Dementia in 2022. Of course, there were slight changes in her behavior long before that; as early as 2017. It was easy to overlook the early signs. They were out of context, and because everyone knows that when you get old you “start to lose it,” we thought little of her comments about the man standing beside the garage out back, under the palm tree; the one who singlehandedly forced the family business to close its doors. It was just mom being mom, she was no stranger to saying crazy things. Looking back it was absurd to brush such behavior aside, still we did just that, and for a while she seemed fine; nothing else to worry about. But then bouts of confusion started to come and go, and we began exploring potential causes. Several neurologists later, and with her showing signs associated with Parkinson’s, we could check nine of the nine symptoms that define Lewy Body Dementia.
I’m grateful she lives with my sister who, along with my brother, provide her with round-the-clock care; and I’m blessed that I get to visit for two weeks every two months and offer my help, and my love, for this beautiful woman I call mom. My team and I will be honoring her every step of the way. We look forward to hearing all the other stories that unite us in one common goal: to raise funds and bring awareness to the world. Anything that helps draw attention to dementia (be it Alzheimer’s, or any other form) puts us one step closer to understanding what it is, what causes it, and, until there’s a cure, how best to care for those who suffer its debilitating effects. Walk on!
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