This is so personal.....as I write this I am sitting on the couch after putting my ex husband to bed...twice. After getting his pajamas on he redressed into his jeans and was very agitated when he had to do it all again. Its impossible to read his mind and he is unable to communicate his thoughts so I am guessing when I say that I think he was angry at himself for forgetting. The days are long when caring for an adult with Alzheimer's disease. We pass the time with meals, getting dressed, playing catch, taking walks and cleaning up but there is also a lot of down time. I am concerned that he is not engaged, especially during shelter at home however there is very little that holds his attention for very long. It is so profoundly sad to witness someone whose complete pleasure was helping others now need help doing everything. When I glimpse into our future as a family I see full time care as a necessity. This is all consuming and no one person or family member can manage on their own. I am fully committed to manage Bud's care moving forward and will need so much support and direction. That is why our family is walking...for Bud and all people who are dealing with Alzheimer's and all other dementias. If we can raise money and awareness and help others through our experience then this will have been tragedy turned into opportunity. I need your support. Prayer, donations, friendship...help comes in many forms. Thank you for reading this and for your consideration.
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