1st Annual Susan Tose Fundraiser for Alzheimer's
We invite you to join Ann, Pete, Bob, Marnie and special guests for an evening sharing our love and support for those we cherish suffering from Alzheimer's. Purchase your ticket(s) today to attend our fundraiser on behalf of our mother, grandmother, friend and Philadelphia Eagles champion, Susan Tose. Together we can huddle up and make a difference. Like we say in Philly, we got this!
Monday, November 11th, 2019
VIP Tickets $100 5pm-6pm
Guest Tickets $50 6pm-10pm
Chickie and Pete's: 1526 Packer Ave Philadelphia, PA 19145
To purchase a ticket, copy the link below into your browser: https://tinyurl.com/SusanToseFundraiserTickets
Enter your ticket purchase amount (1VIP Ticket = $100 ; 1 Guest Ticket = $50) by clicking "other amount" and complete the payment information to secure your ticket(s)!
An electronic ticket will be sent to the email address provided when making your donation. 100% of proceeds go toward supporting the Alzheimer's Association through care, support and research.
If you are unable to attend and/or would like to make a general gift to support Susan Tose and efforts of the Alzheimer's Association, please visit: http://act.alz.org/goto/SusanToseSpencer
Read about Susan Tose and how Alzheimer's has impacted her family:
Susan Spencer, a former maverick entrepreneur, took over as general manager of the NFL’s Philadelphia Eagles in 1984 while her father, Leonard Tose, was the team’s owner. Susan remains the only female GM in NFL history. Today, Susan is living with Alzheimer’s, and her daughter Marnie shares their story from her point of view as both a daughter and caregiver.
My mom, Susan Spencer, was a true boss lady: a businesswoman, a female attorney and GM and VP of professional football team, the Philadelphia Eagles. She was a business pioneer, with dozens of ‘firsts’ as a female in the sports world. She was a role model for so many of my friends, and the center of my universe.
Alzheimer’s is a scary reminder that we cannot control our lives. When Alzheimer’s hits a family, it conjures many feelings — disappointment, loss, frustration — and creates a little bit of chaos. I learned this all when my mother was diagnosed with Alzheimer’s in 2018.
Part of my personal Alzheimer’s journey includes telling my mom’s story and listening to the stories of others, continuing to add value to my life as a daughter and caregiver. It reminds me of something my mom always said to Eagles players: “If you aren’t adding value, why show up?” She found the value in everyone and encouraged them to find it in themselves.
Not having my mom as a friend and support system as this disease continues to affect her has been a tremendous loss. It has left a hole in our lives that is impossible to fill. But I am opening myself up to education from the Alzheimer’s community and am slowly trying to fill that hole by sharing the lighter moments (like when my mom says she won’t be seen outside with me based on what I am wearing, especially if it’s my Dallas Cowboys sweatshirt instead of my Eagles one!) and the heavier ones (of which there are many).
I am grateful to be her primary caregiver, and we are also lucky enough to have 24-hour care. At times it can be incredibly sad, an out-of-body experience for me as a single mother and caregiver for my mom, who is no longer the mom she was. My three teenage kids are learning tremendous lessons about supporting people you love. They are also learning how to keep the qualities that made mom who she was for most of her life — a vibrant, funny, hardworking person who gave back to others — alive.
It can be counterintuitive for any parent to rely on their children, but my mom has been gradually pushing back less. I find ways for her to feel engaged. I bring her along when I go to the bank; she wears her favorite pink business jacket and joins me for a meeting. These activities make her feel like she is part of something bigger than herself. As a former social butterfly, it’s important that she socialize and stay active for as long as she can. I hold close the unfortunate truth that sometime in the near future, she may not want to do these things any more. I hold on to what we have TODAY.
My mom is the reason I am a strong, independent woman. My mom kicked butt at work while making time for herself: being a wonderful mother, constantly traveling and not being afraid of success. I have always had a great respect for her work ethic. She taught me how to make the right sacrifices, how to be empathic leader and how to encourage my kids to take on responsibilities.
Currently, more than 5 million Americans have Alzheimer's and that number is expected to grow to as many as 16 million by 2050. Our future is at risk unless we can find a way to change the course of this disease.
Alzheimer’s disease is not for the faint of heart. As a caregiver, you are a professional athlete. There are no winners in this game, but you fight for as long as you possibly can and as long as you need to. I fight against the disease because my mom can no longer give back the way she did for her entire life. I am continuing my life of philanthropy through her. The moments I spend with others being affected by this disease gives me reassurance that ultimately nothing is ever as good as it seems or as bad as it seems. We just keep soldiering on. We keep building connections. We are all in this together.
Together, we can end Alzheimer's disease. Please make a donation in honor of my mother, Susan to advance the care, support and research efforts of the Alzheimer's Association.
Thank you for joining my family in the fight against Alzheimer's!
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