My first exposure to dementia and Alzheimers ( which was not a diagnosis at the time) was wondering why my parents would lock my grandfather in his bedroom at night and why he would ask me to call the police because these people ( my parents) were keeping him hostage. At age 7 I didn’t realize my parents were trying to prevent my grandfather from leaving the house and wandering at night. My grandfather had very limited vision which made it all the more frightening for him. When my parents could no longer care for him, they placed him in a nursing home and shortly thereafter he was transferred to a mental institution where he later died.
His daughter, my Mom, made a point of telling her five children to never send her to one of those places, and we honored her request. Initially we had a young caregiver with her, but as her dementia developed it was necessary to have round the clock shifts of family members and professionals care for her. My Mom’s generation had that perfect cursive handwriting and I cried the day the caregiver called me and said that Mom could no longer sign her name. Here was a woman with five children that never kept any written lists, who managed to get us to all of our games and classes, but now could not recall what she had for lunch, or even that she had just had lunch.
Prior to my Mom’s passing in 2010, I had already started getting involved with the Alzheimer’s Association. I ran the Baltimore Half-Marathon for 4 years, hosted Yoga events for the Longest Day, participated in the Memory Ball and continue to recruit walkers for my 5th Walk. All in, I have raised $86.4K for the Alzheimer's Association and want to raise $100K so we can find a cure for this disease.
In July 2020 I will step down from my two year term as the President of the Alzheimers Association. This has been an incredible experience to see how a commited board and staff work together to move the needle forward. Because I love the walk and am intrigued by how well it is run and the volunteer's passion and commitment, I decided to help and became a Co-Chair with Stuart Kessler. It is an honor to work will all the volunteers and staff on this big event which will be different and creative following current social distancing rules.
A world without Alzheimers and other dementias.
Our mission is to transform the landscape of dementia forever. Until the day we find a cure, we will strive to create a society where those affected by dementia are supported and accepted, able to live in their community without fear or prejudice.
DON’T JUST HOPE FOR A CURE……HELP US FIND ONE!
Please come walk with us on or if you can’t be there, I would greatly appreciate any donation you can make!
Thank you for helping us advance Alzheimer's support, care and research!
I have raised
Elite Grand Champion
Walk Committee Member