Hi, My name is Marlayne Skeens & My Husband, Tom has ALZ~
UPDATE on Pappy Tom: Tom Skeens, 68, formerly of Middletown, Ohio passed away 5-12-19 peacefully of ALZ (That is what is on his death certificate) I watched him take his last breath ~ One more step in the longest Goodbye & at the scattering of his ashes, it will be the last Goodbye ~ ALZ took my Very Best Friend ~ Please help, so ALZ doesn't take your Very Best Friend or Family ~
* Pappy Tom's Story before 5-12-19
Tom was diagnosed @ age 61 after a year of me begging our doctor to please send Tom to a neurologist ~ unfortunately, Tom didn’t show signs while in the office, except for Tom failing the “Clock Test” * Be Proactive ~ I started writing everything down I thought was different with Tom ~ Our doctor finally sent us to a neurologist ~ In Fact after consultation & testing, Yes, Tom did have ALZ ~ Tom was beyond the beginning stages, Again Be Proactive ~ Change doctors if you have to ~ I wish I had sooner * Tom was an avid reader, crossword puzzle solver, walked a lot, was healthy & he had the heredity test, which showed nothing that Tom should have or would have ALZ ~
Tom was forced to retire & give up driving way to soon ~ Tom went with me everywhere, including my work ~ Everyone was so kind, even though ALZ wasn’t ~
At 65 & a half, Tom had to transition from home to a Memory Care Unit which broke my heart ~ As a caregiver, I thought I could take care of Tom all by myself, much to my surprise, I couldn’t ~ When the neurologist told me to start looking for a Memory Care unit # 1 for Tom to get the extra care I couldn’t give & # 2 to take care of myself ~ As hard as it was, I found out I could visit Tom & still give him the love by being there, taking walks, eating a meal together, holding his hand, let him know that I still loved him & that we were taking The Journey of ALZ together ~
The Journey isn’t easy & financially, it can be devastating~
Family & Friends have a hard time watching someone they love, needing so much help & become a toddler again with finally becoming a human skeleton ~ Watching your loved one, not being able to function as they once did & not being able to remember memories or faces is extremely hard on everyone ~
The last few months Tom has been falling & has lost his peripheral vision, which most likely has caused him to fall & the last few weeks, Tom doesn’t seem to know me, other than I’m the one who comes almost every day ~ Tom wasn’t a big talker before ALZ; however, now he seldom talks (more like a mumble) & just stares ~
I know there isn’t anything that can help Tom be Tom again; however, I hope I live to see a cure for ALZ or what causes ALZ, so we can make changes to the way we live ~ Living with ALZ isn't living in the late stages :-(
HELP END ALZ ~ Please donate to the ALZ through “PappyTom” http://act.alz.org/goto/pappytom
If you can Walk on September 14th, 2019 ~ Please join us @ Voice of America in WestChester, Ohio ~
Thank You, Marlayne
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