I am excited to have signed up for my fourth walk to raise awareness and support for the Alzheimer's Association
Molly's vision problems started six years ago. She was just 54 and we thought, 'no problem, we can get new glasses or surgery, right?'
Well, we visited many doctors (at least they had some certifications) and had way too many tests run and were misdiagnosed two or three times. After almost a year of this we finally got the diagnosis of PCA (posterior cortical atrophy) caused by early onset Alzheimer's. I will never forget the sympathy/empathy in the doctor's eyes when we were told the news. At that time I did not know that there was no cure, treatment or way to slow this bastard of a disease down, but the doctor did. I still want to beat this!!!
PCA impacts the visual processing area of the brain. Four years ago Molly got a ticket for going the wrong way on a major road near our home. Within a week she had 2 auto accidents on the same day, Thankfully, there were no injuries but on April 18th, 2013 we agreed that this was God's way of telling us that Molly, previously the chauffeur to our 4 overactive kids, should no longer drive. In suburban Atlanta not being able to drive is a game changer. Thanks to all the friends who have stepped up and given rides to Molly!
She is now 60 and her vision has not improved.
This past year we have been involved in a clinical trial and hope that this will help in some way.
For all our lives we've thought we've been doing the "right" things: saving for retirement, exercising regularly to stay healthy to travel, seeing our kids off into the world. And yet, no amount of planning could prepare me for a disease that slowly eats away at Molly's memory and her faculties. Alzheimer's crept in slowly and quietly, an unwelcomed guest who has set up camp in every aspect of our lives. Our outlook on retirement changed the moment we heard the diagnosis.
Now, the "right" things I've done have called into question everything that we were doing them for: When should I retire? How do you weigh the value of health insurance benefits against the time we have left? What time do we have left? What will our grandkids know of Molly?
We are trying to travel as much as possible now and keeping a positive outlook. We are doing very well right now, but somethings take more time and are harder for my wife and therefore us.
It is so sad for me to watch my wife who was an avid reader and degreed lawyer struggle to read or write anything. Thank god she has such inner strength and positive outlook to be happy almost all the time.
God doesn't put more in our lives than we can handle, and I fully believe that a cure exists although is yet to be found. All the donations we raise will go straight to the necessary research to prevent this disease from causing more harm than it already has, not only in our family, but all the families affected by Alzheimer's
There are many more things to say but let us all pray for an end to Alzheimer's. This is why I walk.
This will be our fourth walk and hope to have your support, join Team Barber for the Atlanta walk in October and/or make a donation.
Currently, more than 5 million Americans have Alzheimer's and that number is expected to grow to as many as 16 million by 2050. Our future is at risk unless we can find a way to change the course of this disease.
I need your support to do my part! Please make a donation to help the Alzheimer's Association advance research into methods of treatment, prevention and, ultimately, a cure for Alzheimer's. For the millions already affected by the disease, the Association offers care, education, support and resources in communities nationwide.
Thank you for joining the movement! The end of Alzheimer's disease starts with you.
Thank you for helping us advance Alzheimer's support, care and research!
I have raised
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