Dementia has been part of my life since Nov 2012. It brings tons of scares but nothing will compare to Dec 26, 2018, the worst day my family has ever endure especially for me. I found myself giving Papi (my Dad) CPR the day before his 85th birthday until rescue arrived. After 35 minutes they asked me if we had a DNR which instantly caused guilt to overtake me, my world collapsed giving them his DNR. I was speechless, instantly feeling I failed him. I could only speak to Mima, Betty (my sister) and Leo (my brother-in-law) who were present as we confronted this crisis for 3 days.
Papi knew early on his diagnosis giving us time to discuss his future. I had promised him I would always honor his wishes (Quality versus Longevity) and believed I failed him that day. Hospice was amazing visiting us daily and when they informed us they suspected Papi endured a T1 stroke as well as a seizure that reset his brain I was able to breath, and notify the rest of the family. It's now almost 9 months later extremely grateful to God that he is still with us, eating as well as days that he wears me out. Please join me in walking for this disease for the ones I have lost (close in my heart to include who I considered as my 2nd Dad) and my Papi who is still fighting it on Team "Heavy Duty" or sponsor me that they find a cure ASAP for those who are also fight it daily!!
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