Conquering Alzheimer’s is as much a matter of public policy as scientific discovery, and we need your help to change the future of this devastating disease. As an advocate, you will be invited to engage public officials and policymakers in a variety of ways, urging their support for critical Alzheimer's legislation and policy changes.
Alzheimer's is a devastating disease that cannot be ignored by federal policymakers. Our goal is to see that the federal government takes bold action now to confront this growing crisis. Urge your elected officials to enact public policies that provide better health and long-term coverage to ensure high-quality, cost-effective care for the millions of people who face this disease every day. Learn more
95,000 South Carolinians are living with Alzheimer’s. By 2025, that number is projected to grow to 120,000 South Carolinians with Alzheimer’s. In the meantime, our state has the 5th highest death rate from Alzheimer's disease in the nation! Get the facts.
Given the sweeping economic and social impact of Alzheimer’s disease, South Carolina needs to be proactive in response to this issue. That is why we are working hard to support policies that serve families facing dementia in our state.
95,000 South Carolinians have Alzheimer's, posing a unique challenge to some 318,000 family caregivers. Fortunately, South Carolina's Alzheimer's Caregiver Respite Program provides families with limited assistance to arrange temporary, paid care for a loved one with dementia. By using in-home care, adult day centers or other services, caregivers are able to take a break and support their mental and physical health. Without these funds, many caregivers risk worsening their own health. While the upcoming budget will be tight, it is critical that legislators protect the Alzheimer’s Caregiver Respite Program from any cuts to support family caregivers. Learn more about this program and how to access it.
The COVID-19 pandemic is disproportionately affecting individuals with Alzheimer’s and other dementia, and is creating pressing challenges for long-term care (LTC) communities and residents, where people living with Alzheimer’s disease and other dementias represent a large proportion of LTC residents. There are also growing concerns that social isolation among people with dementia has contributed to individual decline and stress among family caregivers who cannot assess the health of their loved ones. To best support individuals living with Alzheimer’s and dementia during the pandemic, the Alzheimer’s Association has released a comprehensive set of long-term care policy recommendations for lawmakers focused on testing, reporting, surge activation, and providing support. The Alzheimer’s Association will continue to urge state policymakers to prioritize long-term care in the COVID-19 response.
Alzheimer's and other dementias is a full-time struggle for the family caregivers and individuals living with the disease. South Carolina needs a full-time Dementia Coordinator working within our state’s Department on Aging to work across agencies to ensure a comprehensive and coordinated approach to addressing Alzheimer’s. The state previously established the Alzheimer’s Resource Coordination Center within the Department on Aging to educate healthcare providers on the importance of early detection and diagnosis, encourage innovative service delivery systems, inform public policy, and more -- but this important work has never been funded. The Alzheimer’s Association is urging state policymakers to fund the Dementia Coordinator to lead this work and ongoing implementation and updates to the State Plan.
Across the country, the Alzheimer's Association and its advocates are working diligently to speak up for those with Alzheimer's disease or related dementia and their caregivers. Learn more about our nationwide state policy priorities.
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