Cynthia's Walk Donation Page
Dear Friends and Family,
Another year has come and gone and it is once again time for the annual Walk to End Alzheimer's. This year I have been particularly reflective of the impact that this disease and other dementing illness have impacted on me personally and professionally. 30 plus years have come and gone since my Dad was diagnosed with 'hardening of the arteries'. A clear clinical diagnosis was not available, understood or even meaningfully considered at that time. While we have come a long way, I can honestly say, with great disappointment, we still have a long road ahead.
We clearly need the funding for the research that will preempt or (dare I say) prevent this horrible disease that strips it's victims slowly of their person-hood. In its wake, are their loved ones who struggle to find answers, to find hope and to find support. I am happy to report that the funding stream has greatly improved through the efforts of the Alzheimer's Association at the national level. However, there remains a void in the medical community to aggressively seek to diagnose early and to provide for proactive care planning in support of the individuals rights for self-determination.
When my Dad was given a non-diagnosis and we were sent on our way, my family had no idea what we were clearly up against and where to go for help. We fumbled through a system we had no knowledge of. While there is certainly much more information available to families regarding this disease and support systems available through the effort of the Alzheimer's Association, the lack of clear diagnosis and health provider engagement continues to occur at much too frequent a rate.
During he last 25 years of my career I have attempted to help to change this pattern and to provide the families and individual with AD the respect and dignity they deserve. My efforts pale in comparison to the need for a focused process that is being spearheaded by the National organization and being enacted at the local level by our very competent and dedicated Alzheimer Association. I can say this with complete honesty as I have the honor of serving on our local Board of Directors and collaborate directly with many of the professionals within the organization.
The need for financial support remains paramount to the goals outlined above and to continue to direct efforts from a national, statewide, local and right down to the individual level. I ask for any contribution you can make. I know many or you reading this have your own stories to write. I encourage you to create your own team and join us on September 29th.. However, if you cannot, know that the hundreds who walk, walk for you too.
Thank you for helping us advance Alzheimer's support, care and research!
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