As many of you know, in 2012, Michael was diagnosed with Alzheimer’s. We have made great progress since Michael’s diagnosis and have a “new normal” lifestyle by implementing new programs and processes that help us succeed in our day-to-day lives.
Michael enjoys biking, tennis, paddle, golf and music and art therapy as well as Oliver and Baxter our two emotional support animals. In April 2016, Michael will be completing an 18-month clinical trail at the Byrd Institute in Tampa, Florida. The trial, by Merck, is producing a new drug, MK-8931. This study is intended to slow the progression of the illness and provide more quality time for patients and their families. We’re fortunate to be able to continue in their extended program and receive the medication for the next 36 months or until the medication is FDA approved. We’re very excited to be a part of this potential breakthrough in the pursuit of finding a cure for Alzheimer’s.
We continue to enjoy our life together. So far, our travel this year has included spending time at our home in Sarasota with family and friends. We’re blessed to enjoy our children, starting with a football game at Auburn where Tara, Michael’s youngest daughter will be graduating in May. We also traveled to Atlanta to visit his oldest daughter, Laura and her husband, Ben, and our grandson, Jack, who is getting bigger and faster by the minute. He’s turning two in June. Sammie, my youngest, is doing awesome. She graduates in May and will start her freshman year at Michigan State this August. Jared rocks; he’s finishing his junior year at Indiana University, IU. We were just in Bloomington to kick-off the excitement before March Madness starts and see IU beat Purdue in the final seconds of the game!
Our travel plans will continue as we head back to Montana in early July to Mountain Sky for our third annual trip in the beautiful wilderness that includes hiking, fly fishing, white water rafting, “drunk jenga” and fun with good friends!
More exciting, Michael is turning 60 July 26th! For his birthday, we’re planning to celebrate with family and friends by having a big beach party in his honor. And to round out the summer, we’re celebrating our 4th wedding anniversary in September! Life is good!
Our biggest news we have to share is a web site we’re developing (www.AlzheimersEverydayLiving.com), which will offer people everyday tips for managing the disease. This site also will provide a perfect platform for announcing special events, like the 2016 Walk to End Alzheimer’s as well as an update on our forthcoming book, The 24-Hour Rule: Living with Alzheimer’s. Yes, we’re writing a book! We want people to know how to preserve the quality of life and enjoy each and every moment versus thinking there is no hope to fighting this illness. Michael and I continue to be relentlessly positive and plan to beat this illness! Therefore, I don’t plan to miss a moment.
Since my retirement last June, our focus has been to become more actively involved with the Alzheimer’s organization and continue to build awareness and fight this devastating disease. This year, I am a Co-Chair for the 2016 Walk to End Alzheimer’s Event. Campaigning about Alzheimer’s and the impact it can have not only on the individual suffering but also on the family living with the illness is extremely important. As the old saying goes “knowledge is power” and, in the case of Alzheimer’s, it can also bring understanding and peace.
We’re so lucky that every day researchers discover new advances in technology and medications intended to beat this deadly disease and allow people to live long and fulfilled lives.
As of 2015 Alzheimer’s Disease Facts and Figures state: the number of Americans living with the Alzheimer’s disease is growing and growing fast! Alzheimer’s in the 6th leading cause of death in the United States. Today, 5.3 million people are living with Alzheimer’s disease including an estimated 200,000 under the age of 65. By 2050, up to 16 million will have the disease. Only two-thirds (3.2 million) are woman. And within the next 10 years, 19 states across the country will see a 40% or greater growth in the number of people being diagnosed with Alzheimer’s. Unfortunately and frightening, someone in the United States develop Alzheimer’s every 67 seconds. In 2050, someone in the United States will develop the disease every 33 seconds.
Michael and I are asking for your support by participating in the 2016-Walk to End Alzheimer’s. Together, we can become an unstoppable force against this devastating disease. You can help us in two ways: first, please join our Team Levin-Folio on Saturday, September 17, @ 8:00 am in Glenview, IL and participate with Michael and me in our walk against Alzheimer’s. This will be our fourth annual “Walk to End Alzheimer’s” and we will continue to make this a memorable event. Continuing in our tradition; following the Walk, please join Michael and I for an open house from 10:00 am – 2:00 pm for food, drinks and lots of fun – 740 Great Elm Lane, Highland Park, IL. Please see the attached inviting to our upcoming event.
Second, we hope to make a big contribution in the fight against Alzheimer’s by raising $25,000.00, and would be so grateful if you join the walk, (virtual walkers) or sponsor us.
Your support of the Walk to End Alzheimer’s will help the Alzheimer’s Association to enhance the Alzheimer’s care and support and advance critical research for all those affected by this horrible illness. Help us reach our goal by making a donation to our fundraising page.
Together, we can make a difference! Please go to WWW.ALZ.ORG, select the tab Walks and visit Levin Folio team; and register for the walk with us and/or donate today!
Thank you for being part of our life, sharing both the good and bad times. Michael and I are beating this illness and will continue to live a wonderful and long happy life together filled with incredible memories shared with family and friends!
All the best,
Cheryl and Michael
We have raised
Search for Team Members
To find a team member, start typing their name below.