is fundraising to honor:
My Father and Brother-in-law
supporting the fight to end Alzheimer's
Join me on June 21st, the LONGEST DAY of the year, for the Longest YARD GAMES!
Once again, we’re getting together to have some fun and raise money to help fund massive, on-going ALZHEIMER’S RESEARCH and to raise awareness and support for ALZ CAREGIVERS.
Maybe this is the year for a break through? We can’t quit. Our lives are at stake. Last year we were able to MATCH what you so generously donated up to $2500.
This year - thanks to the same donor, we are able to match up to $5000. So, let’s see what we can do. 10K would be astounding.
June 21is the longest day of the year. The summer solstice. For me, and countless others, a day to honor those affected by Alzheimer’s. For every victim there are care givers. 6/21 is also a day to show support for the other innocent victims of Alzheimer’s, who absorb the painful truths of a life lost too soon, while having to confront the day in-day out of time-consuming care.
I’m asking for your support in my participation of this year’s Longest Day.
Last year I told the stories of my dad, Lewis Cohen (Lewie to his friends and family) who began showing symptoms of Alzheimer’s in the late 1980’s and passed away in 1995. My brother-in-law, Marshall Krassner began showing symptoms in 2008 and my sister Judy is still deeply involved in his care today. Marshall is in a late stage and in hospice care.
The hardest thing about Alzheimer’s Disease is the long goodbye.
In Judy’s case, over 10 years. Imagine watching a person you’ve been so close to, slowly…just…disappear, leaving only a familiar face in their place. It’s like living in that old science fiction movie THE INVASION OF THE BODY SNATCHERS, only a whole lot scarier. Like the movie, there is no happy ending.
Angela Lund M.A., Associate of Neurology at Mayo Clinic, is referred to as a Co-Investigator of the Outreach, Recruitment, and Education Core of the Mayo Clinic Alzheimer’s Disease Research Center.
For as frightening and difficult as we know a side of care giving to be, Angela Lunde offers hope with an entirely different approach.
When I first heard her speak, she likened the role of a care giver as someone who wakes up one day and finds out they are running a marathon - starting now. Oh, and by the way, you’ve never even owned a pair of athletic shoes. You’ve never run farther than a few hundred feet. Ok, Ready?
Caring for someone with Alzheimer’s disease is made up of an infinite number of small moments where one can either habitually react and increase stress or take a more mindful approach.
As far as I know, a medical breakthrough aid for caregivers isn’t happening any time soon.
Angela Lunde wants to give more caregivers an opportunity to learn more about techniques which can be applied and incorporated throughout a day.
Unfortunately, long before anyone had many ideas about care giving techniques, it was pretty late in the game fo many. The emotional and financial weight of preparing for the coming stages can slowly suck the life out of us. We have to find a way to manage both pain and loss at a cost we can live with. Who wants to think about that?
Care givers naturally adapt as best they can. In Judy’s case, she found a way to lighten her load by creatively introducing Marshall to several different care helpers who have grown to love and care for him through the years. This has allowed her to keep working, keep him close and keep a loving relationship with the women who come to be with him while Judy is away.
Not all care givers have this option. Often there is no getting away from the sad reality that you have two full-time jobs. Along with this you can expect a lack of sleep, relaxation and exercise which will take a toll.
And then there’s the whole where the hell did my life go phenomena. The lives of friends and family continually moves forward while the life of a care giver stand’s still.
I’m sure you can see just how debilitating this disease is. In many respects, the caregiver, whose mind is intact, will suffer more than the stricken who is no longer aware.
My CAUSE & EFFECT group is still in the process of working on a pocket helper book for care givers. The little book holds a few photos, gives ideas, keeps some important numbers and mostly gives a care giver some soft and subtle reminders about the person they are caring for, because sometimes you need to keep those things close. The little book also has a few Could you give me a hand coupons to give to those of us who can find a little time, or who have offered a helping hand, to be able to give a care giver a break. It might be sitting with someone in the early stage where you can supply both company for affected, and time off for the care giver. In later stages it may be just visiting or looking at photos or remembering old songs. (An often surprisingly great way to make a connection.)
Ideas on care giving seem to be slowly evolving since my sister first had to face her imminent future. Caring for a person with Alzheimer’s or dementia often involves a team of people. Whether you provide daily caregiving, participate in decision making, or simply care about a person with the disease there is an abundant amount of resources to help.
Worldwide, 50 million people are living with Alzheimer's and other dementias.
Together, we can show those facing either side of Alzheimer's disease that they are not alone.
Please make a donation on this page today to help the Alzheimer's Association support all those facing the disease.
Join me at Budman Island’s tiny Tiki Lounge and quaint south Minneapolis back yard for what we hope will be a lovely Summer day. Tiki island cocktails for adults and Shirley Temple’s for any kids who actually knows who that is.
Crazy fun Yard games that we expect nobody will take too seriously. In other words, fun for all ages.
Enjoy the day. Hang with friends, old and new.
Email, text or message me for the address.
A donation of ANY size is appreciated.
When you make the gift of a donation of any amount to ALZ today, it will be matched dollar for dollar by a generous anonymous donor to a maximum of 5000 dollars!
DOUBLE your impact! Please pass this on to friends and family.
Whether I see you on the LONGEST DAY or on the donation board, thank you so much for your time, attention and donation!
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The dollars you raise fuel the care, support and research efforts of the Alzheimer's Association.
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