Hello everyone! Thanks for visiting my fundraising page dedicated to the Alzheimer’s Association. It’s a great honor and I’m thrilled to share my story!
I’m the Board President for the Junior Committee, which supports this fantastic event. This is my FIFTH year being involved and I couldn’t imagine spending my free time doing anything else!
When I got involved with RivALZ, signing up as a player with no direct connection to the cause, I had no idea how much it would change my life. You know how most people test the waters first? They dip their toes in to feel the temperature? I dove in head first. I started as very unsure of what the Alzheimer’s Association actually did to being a Junior Committee board member in three VERY short years.
A little about the disease:
-It’s the most expensive disease – it will cost the nation $277 Billion dollars in 2018
-Someone is diagnosed every 65 seconds
-It’s the sixth leading cause of death and the only one in the top ten without a way to prevent, cure or slow progression
-Other facts and figures click here - http://www.alz.org/facts/
The stats behind this disease are shocking. That’s why I’ve done my best over the last few years to raise funds, awareness, educate and advocate. We are heading to Washington DC June 17-19 to meet with our representatives from Congress to ask for more research dollars to fund this disease.
Our three specific asks this year will be as follows:
1) To please send a letter of support to the Chair and Ranking Member of the Appropriations Committee supporting an additional $425 million in Fiscal Year 2019 for Alzheimer’s research activities.
2) To please cosponsor the Building Our Largest Dementia (BOLD) Infrastructure for Alzheimer's Act, which would establish Alzheimer's centers of excellence across the country, provide funding to public health departments to implement effective Alzheimer’s interventions, and increase data collection, analysis and reporting to measure progress and help identify opportunities for public health interventions.
3) To please cosponsor the Palliative Care and Hospice Education and Training Act (PCHETA), which would ensure an adequate, well-trained palliative care workforce through workforce training, education and awareness, and enhanced research. http://hospiceactionnetwork.org/pcheta-introduced-in-house/
We all see a world without Alzheimer’s, we just need the rest of the world to see that too.
Within my time as a member of the Junior Committee, I have made some lifelong connections and expect them to be in my life for years to come. Some of the people I work with daily, sometimes hourly, have become some of my closest friends that I never would have met otherwise.
I want to personally thank them for being my motivation in this cause – like I said I am not personally affected by this disease, but…I am. It may not be in my immediate family but these people have become my family.
Thank you, specifically to my entire Junior Committee family. I’m so glad to know you and walk with you down this journey to tackle this disease.
Thank you all in advance for your generosity – together, we can tackle Alzheimer’s disease.