Hello everyone! Thanks for visiting my fundraising page dedicated to the Alzheimer’s Association. It’s a great honor and I’m thrilled to share my story!
I’m the Blondes VS Brunettes co-chair for the Junior Committee. This is my forth year being involved and I couldn’t imagine spending my free time doing anything else!
When I got involved with Blondes VS Brunettes, signing up as a player with no direct connection to the cause, I had no idea how much it would change my life. You know how most people test the waters first? They dip their toes in to feel the temperature? I dove in head first. I started as very unsure of what the Alzheimer’s Association actually did to being a Junior Committee board member in three VERY short years.
A little about the disease:
-It’s the most expensive disease – it will cost the nation $236 Billion dollars in 2016
-Someone is diagnosed every 66 seconds
-It’s the sixth leading cause of death and the only one in the top ten without a way to prevent, cure or slow progression
-Other facts and figures click here - http://www.alz.org/facts/
The stats behind this disease are shocking. That’s why I’ve done my best over the last few years to raise funds, awareness, educate and advocate. We went to Washington DC the first week of April and met with our representatives from Congress to ask for more research dollars to fund this disease.
Our three specific asks were as follows:
1) More research funding
2) Signing off on the Hope Act
This would increase information going to the patients. Currently, doctors aren’t paid to give care plans post diagnosis. They aren’t required to document Alzheimer’s in their medical charts
3) Signing the PCHETA bill (Palliative Care and Hospice Education and Training Act)
We all see a world without Alzheimer’s, we just need the rest of the world to see that too.
Within my time as a member of the Junior Committee, I have made some lifelong connections and expect them to be in my life for years to come. Some of the people I work with daily, sometimes hourly, have become some of my closest friends that I never would have met otherwise.
I want to personally thank them for being my motivation in this cause – like I said I am not personally affected by this disease, but…I am. It may not be in my immediate family but these people have become my family.
Thank you, specifically to my entire junior committee family. I’m so glad to know you and walk with you down this journey to tackle this disease.
Thank you all in advance for your generosity – together, we can tackle Alzheimer’s disease.