|
View online | Forward to a Friend
|
| May 2013 |
| A Message from Jennifer Howard, Executive Director |
 I want to share with you a personal experience I had a couple of weeks ago. Many of you may know that about 14 years ago, I first came to the Alzheimer’s Association as an M.S.W. intern. I’ve stayed involved with this chapter because I love it. I love the people who work here, and I love the families I have the privilege of meeting and knowing. I love what we’re fighting for - or rather, against.
During this time, one of the most amazing experiences I’ve ever had was two weeks ago when I traveled to Washington, D.C. to attend the Alzheimer’s Association Advocacy Forum. I knew the event. I had talked about it for years. I knew what we were trying to accomplish in D.C. and had talked with so many people who had attended Forum in the past, but this was the first time I could be there myself. I sat in a room of nearly 1,000 advocates from all over the country and some from other countries. While there were many staff members of the Association (including our public policy staff and many like me who traveled in from chapters), the far majority were family members and those living with Alzheimer’s disease.
It’s one thing to know that you are a part of a nationwide and worldwide movement to make this world a better place for our families…to defeat a disease that robs far too many of far too much. While I was at Forum, I really FELT our strength and the power we have. David Hyde Pierce, who is a great advocate of ours, called out each state one by one, and as he did, families stood up in front of the room and called their presence and shared their stories of success in their own state. Every state was accounted for! I was amazing at the amount of public policy successes in each state and how many families were helped because of them!
 The Michigan group that I spent the most time with felt like my own family during the days we were there. We laughed and cried together. We cheered each other on. Our youngest advocate was Hannah at the young age of 13, and another one of our younger advocates was Presley, who is 19 and an advocate since 15. These young ladies were the strongest and bravest of all of us! Both have lost their fathers to Early Onset Alzheimer’s at young ages. We met with Senator Debbie Stabenow twice when we were there, and she took the time to get to know our Michigan volunteers. As the sponsor of the HOPE for Alzheimer’s Act, she also spoke to the entire delegation.
On the last day, nearly 1,000 amazing individuals went to the Hill, walked the halls of the senate and house buildings and told their stories…our stories. We had two asks that day which I share with you because our work is not done…
- Please co-sponsor the HOPE for Alzheimer’s Act
- Please write a letter of support to the chair and ranking member of the appropriations committee to support the President’s $1M allocation of Alzheimer’s research, care and support under the National Alzheimer’s Project Act
That day on the Hill was a sea of people in purple sashes on the steps and through the hallways. Trust me when I say that everyone visiting or working on the Hill knew the Alzheimer’s Association was there and what we were fighting for. My favorite memory of that day is the meeting in Congressman Sander Levin’s office. Hannah was the first to greet him as he walked into the room. She gave a bright smile to him, reached out and grabbed his hand with both of her hands tightly, looked him in the eyes and said…”Congressman Sander Levin, my name is Hannah and before the end of this meeting, I want you to know that Alzheimer’s disease is the most expensive disease in the United States…AND…the costs will increase like no other!”. Congressman Levin will not forget that meeting anytime soon! With advocates like Hannah, we should have Alzheimer’s licked in no time!
If you are living with Alzheimer’s or have a loved one who is, please know that there are wonderful people fighting with you and for all of us right now. There really are superheroes, and I was lucky enough to meet many of them!
If you want to learn more about Advocacy Forum and rich history of our efforts to push Alzheimer's into the political spotlight and the movement we've created to work toward our future goals., please visit alz.org/forum.
 |
| Meet the New Development Director |
 We’re expanding our horizons, and our new Development Director Claire Hughes is leading the way. Claire joined the chapter in early April and brings extensive experience in fund development, marketing and communications to the table. She has championed development for the University of Michigan’s Ford School of Public Policy, the American Red Cross, Summers-Knoll School in Ann Arbor and several health care organizations in Boston.
She also has personal experience with Alzheimer’s disease. “The heartbreak and pain of Alzheimer’s is front and center in my husband’s family. His grandfather and two uncles had it, his dad was recently diagnosed, and sadly, his 53-year old cousin had to be admitted to a full-time care facility last month because of her serious decline,” explained Claire. “I know first-hand how important the work of the Alzheimer’s Association is to caregivers, families and individuals with the disease. Thanks to the generosity of our donors, we provide programs and services free of charge. What other organizations can do that?”
What excites Claire most about her new role is the opportunity to deepen people’s understanding of the impact Alzheimer’s has on families and our communities and to encourage their participation in the mission of organization.
Claire serves on two local boards: Women’s Exchange of Washtenaw and the Ann Arbor Chapter of the American Society for Training and Development, and is a budding Toastmaster. She lives in Ann Arbor with her husband Kevin, their lively sons Tom and Nolan, and their energetic dog Boston. She’s an outdoors enthusiast, experimental exerciser (she’s learning Tai Chi), avid reader and laugh-master (humor is a must!)
You can reach Claire at chughes@alz.org or in the Chelsea office at 734.475.7043. |
| Forget Me Not Days ~ May 17-18 |
 At Bankers Life and Casualty Company, their agents and employees witness firsthand the impact that Alzheimer's disease has on their customers, their families and their caregivers. That's why in 2003 they established Forget Me Not Days, their nationwide fundraising campaign to benefit the Alzheimer's Association.
Kalamazoo and Portage: Visit them on Friday, May 17 from 9:00 AM – 5:00 PM and Saturday, May 18 from 9:00 AM – 3:00 PM at their donation stations at D&W Fresh Market at 2103 Parkview Avenue in Kalamazoo and 525 Romence Street in Portage.
List of other locations is available online
|
| Young Professional Alzhiemer's Advocates of Lansing |
The Young Professional Alzheimer’s Advocates of Lansing’s (YPAAL) mission is to serve the Greater Lansing community by raising awareness of Alzheimer’s disease and providing support for Alzheimer's Association programs, services, events and families affected by this disease. But, YPAAL wants to have lots of fun fulfilling it.
 This group volunteered on April 27 to help Todd Walter at Crosaires with some spring cleaning, gardening, and beautification of their property. Crosaires, Gaelic for "crossroads," is an "Aging in Community" assisted living residence located in Williamston.
If you are interested in learning more about this group, please contact Stephanie at sbarnhill@alz.org or 734.475.7043. |
| Education, Support and Online Resources |
Community Education Programs: Locate an education program in your community or call us at 800.272.3900 if you are interested in bringing one of our programs to your community, senior center, office, church, chamber of commerce, etc.
Caregiver Support Groups: Locate a support group in your community to get support from others who understand what you are going through
Online Resources:
Early Memory Loss Series:  Join us in Brighton, Portage and Muskegon! This series is designed to inform you of early signs and changes, first steps in diagnosis, treatment and planning, and how the Alzheimer’s Association can provide information, assistance, support and resources. Learn more...
Early Stage Social Engagement Program: Join us in Lansing! This offers a fun and comfortable way for people in the early stage of the disease to get out, get active and get connected with like individuals through a variety of community-based activities and social events. Learn more... |
| TrialMatch |
 5 Simple Steps. Make a difference in Alzheimer's research.
Step 1: Access TrialMatch online at alz.org/trialmatch or call 800.272.3900.
Step 2: Complete a brief questionnaire, either online or over the phone to create a profile.
Step 3: The Alzheimer’s Association will compare your unique profile to its comprehensive, continually updated clinical trial database.
Step 4: With your permission, a TrialMatch specialist will contact you to provide a list of trials that match your specific eligibility and criteria.
Step 5: Decide if any of the current trials available are ones you wish to participate in or not.
Questions? Barb Betts Swartz | bbetts@alz.org | 269.342.1482 |
| Reason to Hope |
 June 11 | 8:00 - 9:00 AM Breakfast
ANN ARBOR | Ann Arbor City Club | 1830 Washtenaw Avenue
View or download the brochure
A Reason to Hope community event raises funds for programs and services critical to the individuals and families living with Alzheimer’s disease and raises awareness of the work of the Alzheimer’s Association. Only a few seats left. RSVP today!
Questions? Jennifer Howard | jhoward@alz.org | 734.475.7043
|
| Michigan Charitable Tax Check-Off |
 As a friend of the Association, you are part of the team that is on the front line fighting for Alzheimer's resources. We need your help today to pass a charity tax check-off. We could raise about $100,000 each year in donations that would stay here in Michigan. The legislation passed the House this winter. We need you to use your voice to help us move it through the Michigan State Senate. Please click here to send an email to your State Senator. It will only take a few seconds!
Questions? Carrie Collins | ccollins@alz.org | 248.996.1059 |
| The Longest Day - June 21, 2013 |
 One day. June 21, 2013. Sunrise to Sunset.
Honor the strength, endurance and passion of those facing Alzheimer’s
Still time to register at alz.org/thelongestday | 800.272.3900
From sunrise to sunset, gather your friends and do something you love to make a difference. The funds you raise will help to advance Alzheimer’s research, care and support. Join us on The Longest Day to show that you’re in it until Alzheimer’s is finished.
Questions? Lori Ezrow | lezrow@alz.org | 734.475.7043
The Longest Day Local Event in Benton Harbor:
 Cathy’s Warriors are leading the way! They are hosting a 1st Annual Bag Tournament to raise awareness for those suffering from Alzheimer’s disease. This tournament is being held in honor of Cathy Cloinger and her family, who together have been fighting this mind robbing disease since 2004.
When: June 22, 2013 ~ Held on Saturday - the day after The Longest Day
Where: 68094 Territorial Road, Benton Harbor
Time: Check-In 10:30 AM | Tournament starts at 11:00 AM
Fee: $50 per team (includes t-shirts and BBQ)
If you are interested in making a donation or registering a two-person team, please contact Stacye at 501-860-8654 or icis19@yahoo.com.
|
| 2013 Walk to End Alzheimer's |
 The Alzheimer’s Association’s Walk to End Alzheimer’s is a united movement to reclaim the future for millions and raise awareness and funds for Alzheimer’s care, support and research. Who will you walk in honor or memory of?
Find a 2013 Walk to End Alzheimer's near you
Allegan County | Ann Arbor | Brighton | Chelsea Area | Jackson | Kalamazoo (Portage)
Lansing | Lenawee County (Adrian) | Ludington | Muskegon | Monroe County | St. Joseph
Questions? mglcwalk@alz.org | 800.272.3900
 KALAMAZOO COIN CHALLENGE: The committee is challenging all walk teams to collect coins in May. The winning team will get the trophy until the next challenge in June! If you want to learn more about this challenge or upcoming ones, please contact Kathy Coats. |
| Meet a Walk Team ~ Fred's Fillies |
Who are Fred’s Fillies?
Tami, Kaye, Betsy, and Susan – his daughters!
Although these sisters might be slightly prejudiced, they thought their dad Fred Slingerland was a “genius”! He could build and make anything. He loved working with his hands - rebuilding engines, woodworking, etc. He could usually be found out in his barn doing something, and he did not sit still. He loved his daughters and his sons, but most of all, he loved his sweetheart – his wife Lora. They were always together and had a beautiful relationship - definitely a marriage to be admired. They were wonderful role models for their children. Fred also had a great sense of humor and loved a good laugh!
Then, it all changed! About 7 years ago Fred started forgetting how to do simple tasks that he previously would have considered routine (car maintenance, hooking up the camper, and carpentry work). The family watched as he declined as Alzheimer's took over. On January 11, 2013, he could not keep his oxygen levels up, slipped into unconsciousness and sadly passed away. Until that point, he always recognized Lora, the faithful caregiver who took care of him with much love and devotion. It was very sweet!
His family is committed to help end this devastating disease by raising money for treatment and a possible cure. As they look at his grandchildren, they do not want them to ever have to suffer from this disease. They want it eradicated. Their team "Fred's Fillies" is excited to be participating in this year's Lansing Walk to End Alzheimer’s.
|
| Top Walk Sponsors, Champion Teams and Media Partners |
If you are interested in joining these top supporters and learning more abut the local recognition benefits available, view and download the Sponsorship Opportunities and Commitment Form. The print deadline has been extended to May 15, so don't delay!
 Special thanks to HOSPICE OF MICHIGAN
who has committed to be a CHAPTER SPONSOR
of all 12 of our chapter's walks!
Our chapter truly appreciates their support!
DIAMOND
PLATINUM
   
   
|
| Volunteers Needed |
 Our program team is looking for volunteers to be trained as:
- Caregiver Support Group Facilitators to add additional support groups in our service area
- Volunteer Program Presenters to help educate the community about Alzheimer's
- Helpline Follow Up Call Specialists to provide ongoing support to caregivers and people concerned with memory loss
Questions? Barb Betts Swartz | bbetts@alz.org | 269.342.1482 |
| Our vision is a world without Alzheimer's |
The Alzheimer's Association is the world's leading voluntary health organization in Alzheimer's care, support and research. Our mission is to eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.
Michigan Great Lakes Chapter
310 N. Main St., Suite 100 | Chelsea, MI 48118Regional offices in Kalamazoo, Lansing and Muskegon
To update your email preferences, please click here. |
|
eLearning
2013 Ann Arbor Charity Golf Outing
