Alzheimer's Advocacy in

The Alzheimer's Association, Northern California and Northern Nevada Chapter is the largest group in advocating on behalf of those living with Alzheimer's disease.

Take Action! Become an Advocate

Conquering Alzheimer’s is as much a matter of public policy as scientific discovery, and we need your help to change the future of this devastating disease.

As an advocate, you will be invited to engage public officials and policymakers in a variety of ways, urging their support for critical Alzheimer's legislation and policy changes. Whether you prefer sending emails to legislators, posting updates to Facebook, or hosting events or even meeting in-person with your elected officials, there are many ways you can make a difference as an Alzheimer's Association Advocate.

Become a part of our advocate community today.

Current Action Alerts

Policies

Federal Policy

Alzheimer's is a devastating disease that cannot be ignored by federal policymakers. Our goal is to see that the federal government takes bold action now to confront this growing crisis. Urge your elected officials to enact public policies that provide better health and long-term coverage to ensure high-quality, cost-effective care for the millions of people who face this disease every day. Learn more

Find out who represents you in Congress

The Palliative Care & Hospice Education and Training Act (PCHETA)

Has your Member of Congress cosponsored PCHETA? View the list of current co-sponsors in the House and Senate

Nevada Policy

In 2013, the Nevada Legislative Committee on Health Care released the Nevada State Plan to Address Alzheimer’s Disease, which includes 21 recommendations to Nevada policymakers to help Nevada prepare for the coming Alzheimer’s epidemic and improve conditions for people with the disease and their families. A state Task Force on Alzheimer’s Disease is currently meeting to discuss options for implementing those recommendations; you can read more information about the Task Force here.

The Nevada Legislature adjourned its biannual session in June 2017.  The Legislature is in interim session for the remainder of 2017 and 2018.  Stay tuned for ways to engage your legislator during an interim year.


Thanks to the work of our dedicated advocacy volunteers, the Alzheimer's Association is pleased to announce the passage of the following legislative priorities in 2017:

Alzheimer’s Task Force becomes permanent

 In March the Governor signed Senate Bill 92, which removed the June 30 expiration date from the Nevada Legislative Task Force on Alzheimer’s Disease, making it permanent and allowing members to build on the continued progress of the State Plan.  Formed in 2013 as a three-year workgroup, the Task Force tracks and implements the recommendations of the Nevada State Plan for Alzheimer’s Disease, retires old recommendations, and develops new recommendations.  The Task Force has successfully implemented previous recommendations that include increasing dementia training for health providers and expanding respite services to those under 65 with dementia.

Important statewide milestone for behavioral health issues and dementia passes

 Earlier this month the Governor signed Senate Bill 121, which will form an interim committee to conduct a study on issues regarding the behavioral and cognitive care needs of older Nevadans.  Composed of six legislators and several medical and social service professionals, this committee will seek funding to expand statewide community programs to support caregivers and to educate health providers, and from its findings develop legislative recommendations for the 2019 legislative session.  The Association looks forward to partnering with this exciting new workgroup to develop policies that would educate providers on dementia-related behaviors, improving care for all Nevadans with Alzheimer's disease.

Access to POLST increased

 Last month the Governor signed Assembly Bill 199, which authorizes advance-practice nurse practitioners and physician assistants to sign off on a provider order for life-sustaining treatment (POLST), and to declare that a patient is in a condition that warrants executing the patient’s POLST.  Additionally, Assembly Bill 199 allows certain individuals who are not legal representatives, but who are close enough to a patient to have their best interest in mind to request and file a POLST on the patient’s behalf if the patient is not able to do so.  AB 199 will also create an online POLST filing system with the Nevada Secretary of State.

We know that particularly in Nevada’s rural communities, medical services can be few and far in between.  Expanding access to POLST will allow more rural Nevadans to have their wishes carried out at the end of life, decreasing the emotional burden to loved ones.  Given that 18 percent of Nevadans on hospice have a primary diagnosis of dementia, the voices of our volunteer advocates ensure that the 43,000 Nevadans living with Alzheimer’s disease and their caregivers have access to a POLST.

Find out who represents you in the Nevada Legislature

 

Make a difference in the fight against Alzheimer's! Become an Advocacy Volunteer 

To learn more or apply to join your local Alzheimer's Congressional Team, please contact Zack Smith at 775.786.8061 or zsmith@alz.org.

Ambassador Roles and Responsibilites 

Alzheimer's Congressional Team (ACT) Member Roles and Responsibilites

 

Advocate Resources 

Alzheimer's Advocacy Reporting and Trends (AART): the Alzheimer's Association's online portal to report interactions with members of Congress

Click here for more information on our current federal priorities.

Advocate Spotlight

"The Power of the Purple Sash"

by Cathy Maupin, Ambassador to Congressman Mark Amodei

Click HERE to read

Upcoming Events

2018 Advocacy Forum

April 29 - May 1, 2018
The Washington Marriott Wardman Park
Washington, D.C.

Registration opens in December 2017. Check back later for more info!

Chapter Contact(s)

Chapter Headquarters
Northern California and Northern Nevada
2290 N. First St., Suite 101
San Jose, CA 95131
Phone: 408.372.9900

Our Federal Tax Exemption Number is 13-3039601