Alzheimer's Advocacy in

The Alzheimer's Association, Desert Southwest Chapter is the largest group in advocating on behalf of those living with Alzheimer's disease.

Take Action! Become an Advocate

Conquering Alzheimer’s is as much a matter of public policy as scientific discovery, and we need your help to change the future of this devastating disease.

As an advocate, you will be invited to engage public officials and policymakers in a variety of ways, urging their support for critical Alzheimer's legislation and policy changes. Whether you prefer sending emails to legislators, posting updates to Facebook, or hosting events or even meeting in-person with your elected officials, there are many ways you can make a difference as an Alzheimer's Association Advocate.

Become a part of our advocate community today.

Current Action Alerts

Policies

Federal Policy

Alzheimer's is a devastating disease that cannot be ignored by federal policymakers. Our goal is to see that the federal government takes bold action now to confront this growing crisis. Urge your elected officials to enact public policies that provide better health and long-term coverage to ensure high-quality, cost-effective care for the millions of people who face this disease every day. Learn more

ARIZONA POLICY

For More information on your Congressional and Legislative districts, elected state officials and the status of state bills, please visit the Arizona State Legislature website.

If you need to register to vote in Arizona please visit the Arizona Secretary of State website.

For more information on the Arizona Alzheimer's State Plan, please view this PDF document.

The Arizona Alzheimer's Task Force Work Teams need members! Please read the overview of the Task Force and the four Work Teams. If you are interested in serving on one of the Work Teams please contact James Fitzpatrick at 602-528-0545, or jfitzpatrick@alz.org.

NEVADA POLICY

For more information on your Congressional and Legislative distrcits, elected state officials and the status of state bills, please visit the Nevada State Legislature website

If you need to register to vote in Nevada please visit this website.

For more information on the Nevada State Plan To Address Alzheimer's Disease visit this website.

For information on the Nevada State Alzheimer's Task Force please visit this website.

THE BEHAVIOR RISK FACTOR SURVEILLANCE SYSTEM (BRFSS)

What is the BRFSS?
The Behavior Risk Factor Surveillance System (BRFSS) is the world's largest continuous public health survey, conducted annually in all states and U.S. territories as a partnership between the Centers for Disease Control and Prevention (CDC) and state departments of health. The BRFSS asks questions about health behaviors, access to care, and other health related topics and provides state-specific information. 

What is the BRFSS Cognitive Module?
The module asks the respondents abuot "confusion or memory loss that is happening more often or is getting worse" in the past 12 months, and thus captures subjective cognitive decline (SCD) that is more frequent or worse over time. If a respondent answers "yes" to this question, other questions from the module are asked to help understand whether cognitive decline affects the work and function, and what kind of assistance the individual needs.

Why did the name change from "Cognitive Impairment" to Cognitive Module?
The Cognitive Module was formerly called the "Cognitive Impairment" Module. In the years since the questions were developed, new diagnostic criteria for Alzheimer's disease were released that included the diagnosis of mild cognitive impairment (MCI). To avoid confusion surrounding the word "impairment" - and to ensure that the results of the BRFSS survey are in no way interpreted as indicative of medical diagnosis - the name of the module was changed, and it is more accurate to characterize the data as reflecting subjective cognitive decline, not impairment. 

What is meant by subjective cognitive decline (SCD) and why is it important?
The Cognitive Module does not - and was never designed to - measure the prevalence of MCI or Alzheimer's disease. Instead, the module measures the prevalence of people who may be early in the "continuum" of Alzheimer's and other dementias - that is, individuals who in the previous 12 months self-report that they have experienced memory loss or confusion that is happening more often or is getting worse, some of whom have even started to have difficulties as a result of their memory problems. Not all of these individuals will go on to develop Alzheimer's or another dementia or even MCI. But, with worsening memory problems being one of the first warning signs of Alzheimer's - and with SCD being increasingly seen as a risk factor for future dementia - this data provide a snapshot of the potential future crisis, allowing states to plan for future needs.

AZ State Policy 2015 NV 2015 Policies

Advocate Spotlight

Upcoming Events

Chapter Contact(s)

Chapter Headquarters
Desert Southwest
1028 East McDowell Road
Phoenix, AZ 85006-2622
Phone 602.528.0545