Join us for Memory Day 2015 on April 15
How can you be a more effective voice for your loved ones affected by Alzheimer's disease or a related dementia? How can you help ensure that your state legislators support vital Alzheimer's programs and services that assist families in your community? How can YOU make a difference?
Join us for the 2015 Ohio Memory Day at the Ohio Statehouse in Columbus on Wednesday, April 15th. Now in its 17th year, the Ohio Memory Day is one of the longest-running and successful Alzheimer's advocacy events in the nation. Memory Day offers participants the unique opportunity to meet other Alzheimer's advocates from across the state as well as share their personal stories and concerns related to Alzheimer's disease with their elected representatives and their staffers. In addition to the office visits, a luncheon program featuring prominent guest speakers will be held in the Statehouse Atrium at 11:30am.
An estimated 210,000 Ohioans are affected by Alzheimer's disease. Another 591,000 Ohioans serve as their caregivers. By participating in Memory Day, you not only speak for yourself but you speak on behalf of thousands dealing with similar challenges and life experiences.
To register for Memory Day, please call (800) 272-3900.
2015 Public Policy Priorities
- Preserve and enhance state programs that provide critical support to individuals with Alzheimer’s and their family caregivers. There are currently waiting lists for many aging programs and the demand will be growing for such vital services such as respite, caregiver support, adult day, guardianship, elder protection, homecare, long-term care ombudsmen, nutrition assistance and health insurance counseling.
- Collaborate with appropriate state agencies and stakeholders in the continued development, implementation and expansion of the Dementia Capable Ohio Plan. This plan will ensure that all of Ohio is aware, educated and meeting the needs of people living with dementia and will provide support for those who care for them.
- Ensure that current Alzheimer’s Respite programs and services are adequately funded to accommodate the growing need of such programs and services provided by the Alzheimer’s Association in Ohio through the Alzheimer’s Respite Line Item (490-414).
- Collaborate with state agencies to implement standards for proper care delivery and training of all staff in residential, home and community based settings to ensure delivery of quality person-centered dementia care. Focus areas for quality care should include activities; safety and physical environment; nutrition; pain management; and end-of-life care.
- Engage Ohio partners in the support of ongoing surveillance and data collection on cognitive impairment and caregiving through the Behavioral Risk Factor Surveillance System (BRFSS). Collaborate with state agencies to ensure data results translate to better disease awareness and care for Ohioans impacted by dementia.
- Advocate for the protection of Medicaid services or eligibility ensuring families and individuals with Alzheimer’s that needed services are available in the most appropriate setting. Medicaid provides health services, nursing home care and various home and community based services for individuals who meet program requirements. The growing number of Ohioans at all stages of Alzheimer’s and related dementias pose a looming public health crisis that requires planning and coordination by state government.
- Continue to advocate/support federal public policy priorities as identified by the Association’s public policy office.
Alzheimer’s disease is a growing crisis for our families and the economy. The federal government must address the challenges the disease poses and take bold action to confront this epidemic now. Here’s more information on the Alzheimer’s Association’s federal priorities including implementing the National Alzheimer’s Plan and increasing access to diagnosis and care planning.
Memory Day 2014 a Memorable Experience for Ohio Advocates
Alzheimer advocates from across Ohio made their voices heard during the 16th annual Ohio Memory Day at the Ohio Statehouse in Columbus on Wednesday, April 2nd. A record number of advocates (nearly 380) participated in the event, sponsored by the Ohio Council of the Alzheimer's Association.
Advocates attended the luncheon program where they heard remarks from Ohio Lieutenant Governor Mary Taylor, Ohio Department on Aging Director Dr. Bonnie Kantor-Burman, advocate and caregiver Faye Kesner, and the Honorable Speaker William Batchelder (recipient of the 2014 Sharen Eckert Leadership in Advocacy Award).
Memory Day provides Alzheimer’s advocates from across the state the opportunity to meet with their legislators as well as fellow advocates in support of the Alzheimer’s Association advocacy mission.
Advocacy Forum Draws Record Crowd
The Alzheimer’s Association 26th Annual Advocacy Forum in Washington, D.C. attracted a record 850-plus attendees representing all 50 states. The three-day event, held April 7-9, included various panel discussions and presentations on public policy issues, a gala dinner and office visits with members of Congress on Capitol Hill.
Throughout the program, advocates heard from members of Congress as well as Candy Crowley (CNN Chief Political Correspondent), Dr. Margaret Hamburg (Commissioner of the Food and Drug Administration), and Charlie Cook (political analyst and publisher of The Cook Political Report). Dr. Francis Collins (Director of the National Institutes of Health) and others received awards at the National Dinner.
In addition to requesting a $200 million increase for Alzheimer’s research in the FY 2015 appropriations process, the Association introduced new legislation for advocates to bring to their members of Congress. The Alzheimer’s Accountability Act (H.R. 4351/S. 2192) would require scientists at the National Institutes of Health (NIH) to submit an annual Alzheimer’s research budget proposal directly to Congress and the President, specifying the resources needed to fully implement the goals of the National Plan to End Alzheimer’s without political and budgetary restrictions.
For more on the Forum, visit www.alz.org/forum.