Share your Story at Memory Day 2016
How can you be a more effective voice for your loved ones affected by Alzheimer's disease or a related dementia? How can you help ensure that your state legislators support vital Alzheimer's programs and services that assist families in your community? How can YOU make a difference?
Join us for the 2016 Ohio Memory Day at the Ohio Statehouse in Columbus on Wednesday, April 20th. Now in its 18th year, the Ohio Memory Day is one of the longest-running and successful Alzheimer's advocacy events in the nation. Memory Day offers participants the unique opportunity to meet other Alzheimer's advocates from across the state as well as share their personal stories and concerns related to Alzheimer's disease with their elected representatives and their staffers. In addition to the office visits, a luncheon program featuring prominent guest speakers will be held in the Statehouse Atrium at 11:30am.
An estimated 210,000 Ohioans are affected by Alzheimer's disease. Another 594,000 Ohioans serve as their caregivers. By participating in Memory Day, you not only speak for yourself but you speak on behalf of thousands dealing with similar challenges and life experiences.
To register for Memory Day, please call (800) 272-3900 or contact your local chapter for details.
2016 Public Policy Priorities
- Advocate to preserve and enhance state programs, which provide critical support to individuals with Alzheimer’s and their family caregivers. There are currently waiting lists for many aging programs. Moreover, a need for these programs to be accessible and consistent throughout the state is critical. The demand will be growing for such vital services such as respite, caregiver support, adult day, guardianship, elder protection, homecare, long-term care ombudsmen, nutrition assistance, transportation, health insurance and counseling.
- Partner with state agencies to implement standards for proper care delivery and training of all staff in healthcare and home and community-based settings to ensure delivery of quality person-centered dementia care. Focus areas for quality care should include understanding of the disease process; activities; safety and physical environment; nutrition; pain management; and end-of-life care.
- Collaborate with appropriate state agencies and stakeholders to further the continued development, implementation, expansion and sustainability of the Dementia Capable Ohio Plan. This plan will ensure that all of Ohio is aware, educated and meeting the needs of people living with dementia and will provide support for those who care for them.
- Ensure that current Alzheimer’s Respite programs and services are adequately funded to accommodate the growing need of such programs and services provided by the Alzheimer’s Association in Ohio through the Alzheimer’s Respite Line Item (490-414).
- Engage appropriate state agencies in the support of ongoing surveillance and data collection and potential outcomes on cognitive impairment and caregiving through the Behavioral Risk Factor Surveillance System (BRFSS). When available, work to formulate a plan according to the findings of BRFSS that translates to better disease awareness and care for Ohioans impacted by dementia.
- Support and engage in advocacy efforts for the protection of Medicaid services or eligibility ensuring families and individuals with Alzheimer’s that needed services are available in the most appropriate setting. Medicaid provides health services, nursing home care and various home and community based services for individuals who meet program requirements. With Ohio ranking fifth among all states with highest Medicaid costs for people 65 years and older living with Alzheimer's and other dementias, and the growing number of Ohioans living with all stages of this disease, a looming public health crisis is emerging that requires planning and coordination by state government.
- Continue to advocate and support federal public policy priorities as identified by the Association’s public policy office.
Alzheimer’s disease is a growing crisis for our families and the economy. The federal government must address the challenges the disease poses and take bold action to confront this epidemic now. Here’s more information on the Alzheimer’s Association’s federal priorities including implementing the National Alzheimer’s Plan and increasing access to diagnosis and care planning.
Memory Day 2015 a Huge
from across Ohio made their voices heard during the 17th annual Ohio Memory Day
at the Ohio Statehouse in Columbus on Wednesday, April 15th. A record number of
advocates (over 400) participated in the event, sponsored by the Ohio Council
of the Alzheimer's Association.
Advocates attended the
luncheon program where they heard remarks from Ohio Governor John Kasich, Ohio
Department on Aging Director Dr. Bonnie Kantor-Burman, the Honorable Speaker
Cliff Rosenberger, and advocate and caregiver Luanne Bole-Becker. Volunteer
advocate Ginni Ragan received the 2015 Sharen Eckert Leadership in Advocacy
Memory Day provides
Alzheimer’s advocates from across the state the opportunity to meet with their
legislators as well as fellow advocates in support of the Alzheimer’s
Association advocacy mission. Ohioans called upon their Representatives and
Senators to increase the Alzheimer’s respite funding line-item (490-414), to
support future proposals for proper training in dementia care, and to support
Attendance for the 27th Annual Advocacy Forum
Association 27th Annual Advocacy Forum in Washington, D.C. attracted a record 1,000-plus attendees representing all
50 states. The three-day event, held March 23-25, included various panel
discussions and presentations on public policy issues, a gala dinner and office
visits with members of Congress on Capitol Hill.
Ohio’s delegation of
over 50 advocates consisted of seasoned Ambassadors as well as advocates who
were attending the Forum for the first time. The Ohio Council hosted an
inaugural Ohio Advocate Gathering, which included a special research update from Dr. Gary Landreth
(Director of the Alzheimer’s Research Laboratory at Case Western Reserve
University in Cleveland).
program, advocates heard from members of Congress as well as Dr. Richard Hodes
(Director of the National Institutes on Aging) and keynote speaker Dr. David
Satcher (Former U.S. Surgeon General). Lisa Genova, author of Still Alice, received the Association’s
Sargent and Eunice Shriver Profiles in Dignity Award during the National Alzheimer’s
Dinner. Wolf Blitzer (CNN’s lead political anchor) served as the dinner’s
In addition to requesting a $300 million
increase for Alzheimer’s research at NIH, the Association re-introduced the
bipartisan Health Outcomes, Planning, and Education (HOPE) for Alzheimer’s Act.
The HOPE Act (S. 857/H.R. 1559) would ensure that Medicare
beneficiaries newly-diagnosed with Alzheimer’s disease and their families
receive comprehensive care planning services.
For more on the Forum, visit www.alz.org/forum.