Mark Your Calendar – 2014 Ohio Memory Day Set for April 2
How can you be a more effective voice for your loved ones
who are affected by Alzheimer’s disease or a related dementia? How can you help
ensure that your state legislators support vital Alzheimer’s programs and
services that assist families in your community?
Join us for the 2014 Ohio Memory Day at the Ohio Statehouse in Columbus on
Wednesday, April 2. Now in its 16th year, the Ohio Memory Day is one
of the longest-running and successful Alzheimer’s advocacy events in the
nation. Memory Day offers participants the unique opportunity to meet
Alzheimer’s advocates from across the state as well as share their personal
stories and concerns related to Alzheimer’s disease with their elected
230,000 Ohioans are affected by Alzheimer’s disease. Another 700,000 Ohioans
serve as their caregivers. By participating in Memory Day, you not only speak
for yourself but you speak on behalf of the thousands dealing with similar
challenges and life experiences.
So mark your calendar for Wednesday, April
2 and make a difference by attending the 2014 Ohio Memory Day.
2014 Public Policy Priorities
- Preserve and enhance state programs that provide critical support to individuals with Alzheimer’s and their family caregivers. There are currently waiting lists for many aging programs and the demand will be growing for such vital services such as respite, caregiver support, adult day, guardianship, elder protection, homecare, long-term care ombudsmen, nutrition assistance and health insurance counseling.
- Effectively collaborate with appropriate state agencies and stakeholders in the development and implementation of the Dementia Capable Ohio Plan. This plan will ensure that all of Ohio is aware and educated on the needs of people living with dementia and will provide support for those who care for them.
- Ensure that current Alzheimer’s Respite programs and services are adequately funded to accommodate the growing need of such programs and services provided by the Alzheimer’s Association in Ohio through the Alzheimer’s Respite Line Item (490-414).
- Ensure that proper training in dementia care is provided to all individuals employed in the delivery of care in residential, home and adult day settings. Training standards should be based on individual competency rather than an arbitrary number of training hours.
- Support ongoing surveillance and data collection on cognitive impairment and caregiving through the Behavioral Risk Factor Surveillance System (BRFSS).
- Advocate for the protection of Medicaid services or eligibility assuring families and individuals with Alzheimer’s that needed services are available in the most appropriate setting. Medicaid provides health services, nursing home care and various home and community based services for individuals who meet program requirements. The growing number of Ohioans at all stages of Alzheimer’s and related dementias pose a looming public health crisis that requires planning and coordination by state government.
- Continue to advocate/support federal public policy priorities as identified by the Association’s public policy office.
Alzheimer’s disease is a growing crisis for our families and the economy. The federal government must address the challenges the disease poses and take bold action to confront this epidemic now. Here’s more information on the Alzheimer’s Association’s federal priorities including implementing the National Alzheimer’s Plan and increasing access to diagnosis and care planning.
Advocates Make Memory Day A Memorable Experience Memory Day 2013
Alzheimer advocates from across Ohio made their voices heard during the 15th annual Ohio Memory Day at the Ohio Statehouse in Columbus on Wednesday, April 10. A record number of advocates (nearly 360) participated in the event, sponsored by the Ohio Council of the Alzheimer's Association.
Gov. John Kasich, Ohio Department of Aging Director Dr. Bonnie Kantor-Burman and House Speaker William Batchelder were among the featured speakers at the luncheon program held in the statehouse atrium. Each expressed their commitment to the fight against Alzheimer’s disease and supporting programs that will help affected individuals and their caregivers.
Memory Day provides Alzheimer’s advocates from across the state the opportunity to meet with their legislators as well as fellow advocates in support of the Alzheimer’s Association advocacy mission. The legislative focus of this year's event is protection of the Alzheimer’s Respite Line Item (ARLI).
Advocacy Forum Draws Record Crowd
The Alzheimer’s Association 25th Annual Advocacy Forum in Washington, D.C. attracted a record 900-plus attendees representing all 50 states, Great Britain and Canada. The three-day event, held April 22-24, included various panel discussions and presentations on public policy issues, a gala dinner and office visits with members of Congress on Capitol Hill.
Forum keynote speaker Dr. Francis Collins, director of the National Institutes of Health (NIH), made the surprise announcement that he has designated an additional $40 million from his fiscal year 2013 director’s budget for Alzheimer’s research. He told the Forum audience that within the research community “an accelerated momentum in Alzheimer’s research is palpable.”
Among the highlights of the Forum was the presentation of the Sargent and Eunice Shriver Profiles in Dignity Award to singer/actor Glen Campbell and his family during the dinner gala on April 23. Mr. Campbell’s daughter, Ashley, testified about her father’s affliction during a hearing of the Senate Aging Committee the next day.
During visits with their respective congressional representatives on Capitol Hill, advocates promoted the implementation of the National Alzheimer’s Project Act and increasing the federal commitment to Alzheimer’s research. In addition, advocates requested support for the Health Outcomes, Planning and Education (HOPE) for Alzheimer’s Act (S.709 /H.R. 1507). The HOPE Act would improve access to diagnosis of Alzheimer’s disease, provide information on medical and non-medical services for newly-diagnosed patients and their families as well as require documentation of the diagnosis in the patient’s medical record.
For more on the Forum, visit www.alz.org/forum.