November is National Alzheimer’s Disease Awareness Month
Today, approximately 5 million Americans are affected by Alzheimer’s disease, a figure that is expected to triple by the middle of the century. In Ohio alone, there are an estimated 230,000 individuals affected by Alzheimer’s or a related dementia. Alzheimer’s disease is now the sixth leading cause of death in the United States and the only one of the disease-related in the top 10 without an effective treatment or cure.
When President Ronald Reagan first proclaimed National Alzheimer’s Disease Month in November of 1983, the Alzheimer’s Association was just three years old. At the time, there were no treatments available to those affected by the disease and caregivers had few, if any, sources of support and information.
Much has changed over the past quarter century, with significant advances in research and the development of informational and supportive service centers. Still, we are far from a cure and our current health care system cannot adequately deal with the impending epidemic.
During National Alzheimer’s Disease Awareness Month, contact your legislator and share your personal story about how Alzheimer’s disease has affected you, a loved one or a friend. Remind them that the Alzheimer’s epidemic is not going away. Urge them to place Alzheimer’s disease at their top of their health public policy agenda.
For more on what you can do as an advocate, visit: alz.org.
Mark Your Calendar – 2014 Ohio Memory Day Set for
How can you be a more effective voice for your loved ones
who are affected by Alzheimer’s disease or a related dementia? How can you help
ensure that your state legislators support vital Alzheimer’s programs and
services that assist families in your community?
Join us for the 2014 Ohio Memory Day at the Ohio Statehouse in Columbus on
Wednesday, April 2. Now in its 16th year, the Ohio Memory Day is one
of the longest-running and successful Alzheimer’s advocacy events in the
nation. Memory Day offers participants the unique opportunity to meet
Alzheimer’s advocates from across the state as well as share their personal
stories and concerns related to Alzheimer’s disease with their elected
230,000 Ohioans are affected by Alzheimer’s disease. Another 700,000 Ohioans
serve as their caregivers. By participating in Memory Day, you not only speak
for yourself but you speak on behalf of the thousands dealing with similar
challenges and life experiences.
So mark your calendar for Wednesday, April
2 and make a difference by attending the 2014 Ohio Memory Day.
Do a 'Little Big Thing' at the Walk - Sign an Advocacy Postcard
It will take just a moment, but it will have a lasting
When you attend a
Walk to End Alzheimer’s event in your community in September or October, make
sure you sign an advocacy postcard that will be sent to your senators.
The card asks for
their support for two important Alzheimer’s Association’s public policy
strong, accountable National Alzheimer’s Plan that will help change the
trajectory of Alzheimer’s disease
- The HOPE
(Health Outcomes, Planning and Education) for Alzheimer’s Act (S. 709), which
will improve care and outcomes for people with Alzheimer’s disease and their
All you have to
do is sign the card and return it to a Walk advocacy volunteer. The cards will
be collected and send as a group to your senator. Even if you can’t make it to
a Walk event this year, you can still send a message in support. Sign a card here.
2013 Public Policy Priorities
Alzheimer's Respite Programs and Services (Budget Line Item 490-414)
Alzheimer's Respite Line Item 490-414 (Department of Aging) provides
funding for respite and respite related services for caregivers and
those with Alzheimer's disease.
Additional 2013 Priorities
National Alzheimer's Plan
January, 2011 the National Alzheimer's Plan (Public Law 111-375) was
signed into law with a unanimous vote from both the House of
Representatives and the Senate. This law evolved into the first National
Alzheimer's Plan which was released on May 15, 2012. The plan detailed
five overarching goals:
- Prevent and effectively treat Alzheimer's disease by 2025.
- Enhance care quality and efficiency.
- Expand supports for people with Alzheimer's disease and their families.
- Enhance public awareness and engagement.
- Improve data to track progress.
National Alzheimer's Plan required the creation of an Advisory Council
on Alzheimer's Research, Care and Services which meets periodically with
an annual requirement of reporting back to Congress updates and
revisions pertaining to each goal on an annual basis. With these goals
in mind, it is important that our legislators know the importance of
continued funding necessary to develop treatments through research while
also caring for those touched by the disease on a daily basis. Click for more
information regarding the National Alzheimer's Plan.
HOPE for Alzheimer's Act
Health Outcomes, Planning and Education (HOPE) for Alzheimer's Act (S.
709/ H.R. 1507) provides for early diagnosis and access to care planning
services that lead to better outcomes for individuals with Alzheimer's
disease and their caregivers. This act, if passed would provide Medicare
coverage which would include a clinical diagnosis of Alzheimer's
disease and care planning to provide newly-diagnosed individuals and
their caregivers with information about medical and non-medical options
for treatment and support. Click for more detailed information regarding the
Alzheimer’s disease is devastating Ohio and the United States as a whole. Too many have experienced the human and financial cost of this fatal disease firsthand.
You can send a message to your elected member of congress about what is needed to implement a strong National Alzheimer’s Plan as well as what should be done here in Ohio to fight the disease at an Alzheimer’s Town Hall Meeting.
For an advocacy event in your area, please check:
If there is not a local advocacy event being held in your area, or you cannot attend, please share your message via a phone call or email to your elected representative.
As advocates, we all have one goal – to create a world without Alzheimer’s. The time for action is now. Alzheimer’s simply can’t wait.
For more on information on Alzheimer’s public policy, visit our Advocacy Page.
Advocates Make Memory Day A Memorable Experience
Memory Day 2013
Alzheimer advocates from across Ohio made their voices heard during the 15th annual Ohio Memory Day at the Ohio Statehouse in Columbus on Wednesday, April 10. A record number of advocates (nearly 360) participated in the event, sponsored by the Ohio Council of the Alzheimer's Association.
Gov. John Kasich, Ohio Department of Aging Director Dr. Bonnie Kantor-Burman and House Speaker William Batchelder were among the featured speakers at the luncheon program held in the statehouse atrium. Each expressed their commitment to the fight against Alzheimer’s disease and supporting programs that will help affected individuals and their caregivers.
Memory Day provides Alzheimer’s advocates from across the state the opportunity to meet with their legislators as well as fellow advocates in support of the Alzheimer’s Association advocacy mission. The legislative focus of this year's event is protection of the Alzheimer’s Respite Line Item (ARLI).
Advocacy Forum Draws Record Crowd
The Alzheimer’s Association 25th Annual Advocacy Forum in Washington, D.C. attracted a record 900-plus attendees representing all 50 states, Great Britain and Canada. The three-day event, held April 22-24, included various panel discussions and presentations on public policy issues, a gala dinner and office visits with members of Congress on Capitol Hill.
Forum keynote speaker Dr. Francis Collins, director of the National Institutes of Health (NIH), made the surprise announcement that he has designated an additional $40 million from his fiscal year 2013 director’s budget for Alzheimer’s research. He told the Forum audience that within the research community “an accelerated momentum in Alzheimer’s research is palpable.”
Among the highlights of the Forum was the presentation of the Sargent and Eunice Shriver Profiles in Dignity Award to singer/actor Glen Campbell and his family during the dinner gala on April 23. Mr. Campbell’s daughter, Ashley, testified about her father’s affliction during a hearing of the Senate Aging Committee the next day.
During visits with their respective congressional representatives on Capitol Hill, advocates promoted the implementation of the National Alzheimer’s Project Act and increasing the federal commitment to Alzheimer’s research. In addition, advocates requested support for the Health Outcomes, Planning and Education (HOPE) for Alzheimer’s Act (S.709 /H.R. 1507). The HOPE Act would improve access to diagnosis of Alzheimer’s disease, provide information on medical and non-medical services for newly-diagnosed patients and their families as well as require documentation of the diagnosis in the patient’s medical record.
For more on the Forum, visit www.alz.org/forum.