Thank You for Making a Difference
Whether it was in Columbus or Washington, D.C., Ohioans made it
clear to their legislators – the time to end Alzheimer’s is now!
And thanks to you, our message is being heard.
On April 2, more than 350 advocates from across Ohio rallied at
the Ohio Statehouse for the Alzheimer’s Association Memory Day. The event
helped to raise awareness about Alzheimer’s disease as well as draw support for
the 210,000 Ohioans facing this devastating disease and their nearly 600,000
A week later, nearly 1,000 advocates representing all 50 states
attended the 2014 Alzheimer’s Associational Advocacy Forum. Advocates urged
their senators and representatives to support a $200 million increase in
funding for Alzheimer’s research as well as co-sponsor the Alzheimer’s
Accountability Act (S. 2192/H.R.4351) and the HOPE for Alzheimer’s Act
(S. 709/H.R. 1507).
In addition to those Ohioans who attended these advocacy events,
hundreds more made their voices heard by emailing their legislators through a
Alzheimer’s disease is the most expensive disease in America,
costing our nation nearly $214 million a year ($150 billion in Medicaid and
Medicare expenses). Alzheimer’s is currently the sixth leading cause of death
in the U.S. and affects an estimated 5.2 million Americans. By 2050, that
number will nearly triple, unless we find an effective treatment or cure.
That’s why your support as an advocate is so important. Please
continue to speak out in support of the Association’s advocacy mission and
encourage your friends, neighbors, and coworkers to do the same. Together, we
can change the future and help bring about a world without Alzheimer’s.
Thank you for your support,
Ohio Council of the Alzheimer’s Association
2014 Public Policy Priorities
- Preserve and enhance state programs that provide critical support to individuals with Alzheimer’s and their family caregivers. There are currently waiting lists for many aging programs and the demand will be growing for such vital services such as respite, caregiver support, adult day, guardianship, elder protection, homecare, long-term care ombudsmen, nutrition assistance and health insurance counseling.
- Effectively collaborate with appropriate state agencies and stakeholders in the development and implementation of the Dementia Capable Ohio Plan. This plan will ensure that all of Ohio is aware and educated on the needs of people living with dementia and will provide support for those who care for them.
- Ensure that current Alzheimer’s Respite programs and services are adequately funded to accommodate the growing need of such programs and services provided by the Alzheimer’s Association in Ohio through the Alzheimer’s Respite Line Item (490-414).
- Ensure that proper training in dementia care is provided to all individuals employed in the delivery of care in residential, home and adult day settings. Training standards should be based on individual competency rather than an arbitrary number of training hours.
- Support ongoing surveillance and data collection on cognitive impairment and caregiving through the Behavioral Risk Factor Surveillance System (BRFSS).
- Advocate for the protection of Medicaid services or eligibility assuring families and individuals with Alzheimer’s that needed services are available in the most appropriate setting. Medicaid provides health services, nursing home care and various home and community based services for individuals who meet program requirements. The growing number of Ohioans at all stages of Alzheimer’s and related dementias pose a looming public health crisis that requires planning and coordination by state government.
- Continue to advocate/support federal public policy priorities as identified by the Association’s public policy office.
Alzheimer’s disease is a growing crisis for our families and the economy. The federal government must address the challenges the disease poses and take bold action to confront this epidemic now. Here’s more information on the Alzheimer’s Association’s federal priorities including implementing the National Alzheimer’s Plan and increasing access to diagnosis and care planning.
Memory Day 2014 a Memorable Experience for Ohio Advocates
Alzheimer advocates from across Ohio made their voices heard during the 16th annual Ohio Memory Day at the Ohio Statehouse in Columbus on Wednesday, April 2nd. A record number of advocates (nearly 380) participated in the event, sponsored by the Ohio Council of the Alzheimer's Association.
Advocates attended the luncheon program where they heard remarks from Ohio Lieutenant Governor Mary Taylor, Ohio Department on Aging Director Dr. Bonnie Kantor-Burman, advocate and caregiver Faye Kesner, and the Honorable Speaker William Batchelder (recipient of the 2014 Sharen Eckert Leadership in Advocacy Award).
Memory Day provides Alzheimer’s advocates from across the state the opportunity to meet with their legislators as well as fellow advocates in support of the Alzheimer’s Association advocacy mission. Next year’s Memory Day is planned for April 15, 2015.
Advocacy Forum Draws Record Crowd
The Alzheimer’s Association 26th Annual Advocacy Forum in Washington, D.C. attracted a record 850-plus attendees representing all 50 states. The three-day event, held April 7-9, included various panel discussions and presentations on public policy issues, a gala dinner and office visits with members of Congress on Capitol Hill.
Throughout the program, advocates heard from members of Congress as well as Candy Crowley (CNN Chief Political Correspondent), Dr. Margaret Hamburg (Commissioner of the Food and Drug Administration), and Charlie Cook (political analyst and publisher of The Cook Political Report). Dr. Francis Collins (Director of the National Institutes of Health) and others received awards at the National Dinner.
In addition to requesting a $200 million increase for Alzheimer’s research in the FY 2015 appropriations process, the Association introduced new legislation for advocates to bring to their members of Congress. The Alzheimer’s Accountability Act (H.R. 4351/S. 2192) would require scientists at the National Institutes of Health (NIH) to submit an annual Alzheimer’s research budget proposal directly to Congress and the President, specifying the resources needed to fully implement the goals of the National Plan to End Alzheimer’s without political and budgetary restrictions.
Next year’s National Advocacy Forum is planned for March 22-25, 2015.
For more on the Forum, visit www.alz.org/forum.
For more on the Forum, visit www.alz.org/forum.