Excerpts of a letter from the office of Congressman Jim Matheson:
“Congressman Co-Sponsors the Health Outcomes, Planning and Education (HOPE) for the Alzheimer’s Act”
“…To better support the estimated 5.2 million Americans currently suffering from Alzheimer’s disease, and the millions more who will be diagnosed in the future, I recently co-sponsored the Health Outcomes, Planning and Education (HOPE) for Alzheimer’s Act (H.R. 1507). HOPE for Alzheimer’s aims to increase diagnosis of Alzheimer’s disease and other dementias as well as provide information for newly diagnosed patients and their families. Specifically, the HOPE Act would establish a new Medicare channel to access diagnostic and care planning services for people with Alzheimer’s disease and related dementias. It would also ensure that an Alzheimer's disease or dementia diagnosis is included in a patient’s medical record…”
There are 32,000 people living with Alzheimer’s in Utah. That number is expected to go up by 86% by 2020; 127% by 2025. Caring for those with Alzheimer’s are 137,000 caregivers providing care at a total unpaid cost of $1,918,000. These numbers are staggering.
The Alzheimer’s Association--Utah Chapter invites you to become an Alzheimer advocate. Join us and speak up for the needs and rights of people with Alzheimer’s disease and their families.
The Alzheimer's Association 2014 Advocacy Forum is April 7-9 in Washington, D.C.
Online registration is now open. To register click here.
Registration Category Definitions:
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What is an advocate?
Alzheimer advocates play an important role in improving the quality of care and quality of life for people with Alzheimer’s disease and their families by working to improve dementia care and services; improve access to community-based care; improve quality care in residential settings; and expand funding for research and public programs serving people with dementia.
As an advocate, you will:
Utah’s State Plan for Alzheimer’s Disease and Related Dementias: Summary of Goals
GOAL 1 A Dementia-aware Utah
GOAL 2 Health and Dignity for All with Dementia and Those at Risk
GOAL 3 Supported and Empowered Family Caregivers
GOAL 4 A Dementia-competent Workforce
GOAL 5 Expanded Research in Utah
For a copy of the Utah State Plan for Alzheimer's Disease and Related Disorders, please contact Melissa Lee at firstname.lastname@example.org.
For more information, Become an Advocate or Call the Utah Chapter at 801-265-1944.
Alzheimer's Association® and the CDC Have Released New Road Map for Addressing Cognitive Health as a Public Health Issue
Salt Lake City, UT – August 12, 2013 –The U.S. Centers for Disease Control and Prevention (CDC) and the Alzheimer's Association® unveiled The Healthy Brain Initiative: The Public Health Road Map for State and National Partnerships, 2013-2018 at the 2013 Alzheimer's Association International Conference (AAIC® 2013) in Boston on July 15, 2013.
The report encourages public health officials to act now to stem the growing Alzheimer's crisis and is a follow up to the 2007 The Healthy Brain Initiative: A National Public Health Road Map to Maintaining Cognitive Health.
"The public health community is now paying greater attention to the Alzheimer's epidemic that millions of families, including 32,000 in Utah, have been facing for decades and that is poised to drastically increase," said Jack Jenks, Executive Director of Alzheimer's Association Utah Chapter. “Once again the Alzheimer's Association and CDC have partnered to create a tool for public health officials to improve the quality of life for those families and advance cognitive health as a integral component of public health."
The original Road Map addressed cognitive health and functioning from a public health perspective and provided a framework for the public health community to engage cognitive health, cognitive impairment, and Alzheimer's disease and other dementias. More than 280 experts in the field contributed to this new Road Map that outlines specific actions that state and local public health officials can take to promote cognitive functioning, address cognitive impairment for individuals living in the community and help meet the needs of caregivers. While federal agencies play a critical role in leading and funding efforts to address Alzheimer's disease, state and local agencies organize and provide public health services at the community level.
"The goal of the Healthy Brain Initiative is to enhance understanding of the public health burden of cognitive impairment, help build evidence-based communications and programs, and translate that foundation into effective public health practices in states and communities. This Road Map provides guidance to states, communities, and national partners to plan for and respond to this major public health issue," said Lynda Anderson, PhD, Director of the Healthy Aging Program at CDC.
The Road Map includes more than 30 action steps that the public health community can take at the federal, state and local levels over the next five years to address cognitive health and cognitive impairment from a public health perspective.
Following are some of the action items, which fall under four topic areas, included in the Road Map:
Monitor and Evaluate
Educate and Empower the Nation
Develop Policies and Mobilize Partnerships
Assure a Competent Workforce
For more information on The Healthy Brain Initiative: The Public Health Road Map for State and National Partnerships, 2013-2018, visit alz.org/publichealth. For more information on Alzheimer's disease and the Alzheimer's Association, call our 24/7 Helpline at 800.272.3900 or visit alz.org/Utah.
The Alzheimer's Association is the world's leading voluntary health organization in Alzheimer care, support and research. Our mission is to eliminate Alzheimer's disease through the advancement of research, to provide and enhance care and support for all affected, and to reduce the risk of dementia through the promotion of brain health. Our vision is a world without Alzheimer's. Visit www.alz.org or call 800-272-3900.