Join the cause
Join us!! Speak up for the needs and rights of people with Alzheimer’s disease and their families.
Back to top
There are a number of ways for you to get more involved in the Association’s advocacy work depending on the time you have available and the kinds of activities that are of interest to you.
The Alzheimer’s Association utilizes the work of volunteers in capacities such as administrative support and helping withWalk to End Alzheimer’s. To find out more, contact Rob Allen at firstname.lastname@example.org.
Our E-advocacy network is the heart and soul of the work we do
to educate and engage elected officials on our issues. The network is
made up of people from across our chapter's service area who are interested in
the issue of Alzheimer's disease. It is also the easiest way to get
involved in our advocacy work as it will enable you to take action without even
leaving home! You can CLICK HERE to sign up online. Once
you are signed up, you will begin receiving e-mails that will inform you of
state and federal actions that impact our families as well as alerts when we
need our advocates to contact their elected officials with a specific message.
We encourage you to sign up so you can stay up to date on all
the important and relevant policy information and advocacy events!
Additional ways to get involved include:
- Alzheimer's Association
Ambassadors are volunteers with the Association who focus on
keeping their member of Congress updated and engaged on the Association's
federal priority issues. The California Southland chapter is responsible
for finding one ambassador for each of the twenty congressional districts served
by our chapter. While most of our districts do have ambassadors in place,
there are a handful of districts for which we are continuing to recruit. For
more information about this program, read the Ambassador
Program Description (PDF). If you would like to become a part
of this program, please contact Barbra McLendon at email@example.com.
Our chapter also organizes visits to the district offices of all
of our local, state and federal legislators. These visits are the primary
method we use to educate our elected officials about Alzheimer's disease -
particularly around the issues of care and research. The visits are a
blend of the latest statistics and data on Alzheimer's as well as the personal
stories of our volunteer advocates. Being able to tell one’s personal story
is always the most powerful tool that an Alzheimer’s advocate possesses,
particularly when we have the opportunity to meet directly with the elected
official. All of these meetings are scheduled and organized by chapter
staff. We also offer training and technical assistance to our advocates
to fine tune your personal story and make the most of the opportunity to speak
your elected officials about legislation needed by Alzheimer’s families.
Every spring, we hold advocacy days in both Sacramento and
Washington, DC. While the dates for next year's events have not yet been
set, the Sacramento Advocacy Day is typically in March and the Washington, DC
Advocacy Forum is typically held at the end of April. If you sign up as
an E-advocate, you will get information on both of these events in plenty of time
to sign up to participate. Information will also be available on the advocacy
page of our website starting in early 2014.
Early Stage Involvement
Individuals in the early stage of Alzheimer's disease are among our most powerful, influential advocates. A person who is living with Alzheimer's and chooses to raise their voice against the disease not only sends a powerful message to legislators at the state and federal level, but helps remove stigma and negative assumptions associated with Alzheimer's disease. For more information about early stage involvement, contact Amy Landers by email at firstname.lastname@example.org or by phone at 323-930-6289.
Back to top
Please check back for information on upcoming Town Hall meetings throughout the summer.
The Alzheimer's Association is currently tracking a set of two-year bills at the state level that would have some impact on many California families living with Alzheimer's disease. The bills are ranked by level of interest and labeled 'AA', 'A', or 'B'. We invite you to learn more about the bills we are currently tracking by reading our Priority Bill Update (PDF). You may also learn more about these bills by visiting: http://leginfo.ca.gov/bilinfo.html.
There are currently 5.4 million Americans living with Alzheimer’s disease. At the 2013 Advocacy Forum, 900 people from all 50 states came together in Washington, D.C. to ask their members of Congress to take action in two important areas:
- Please show support of a strong National Alzheimer's Plan by sending a letter to the Chair and Ranking Member of the Appropriations Committee supporting the FY 2014 budget request of $100 million for Alzheimer's research, education, outreach, and caregiver support activities.
- Please cosponsor the HOPE for Alzheimer’s Act (S. 709/H.R. 1507).
Many Advocacy Forum attendees have agreed to follow up with their elected officials. This is an important step in sustaining the impact they initiated, and ultimately changing the trajectory of this disease. It is because of the determination and passion of our advocates that we celebrate the release of the first ever National Alzheimer’s Plan in May 2012 by the U.S. Department of Health and Human Services.
The National Alzheimer's Project Act (NAPA) was signed into law by President Obama on January 4, 2011. Individuals with Alzheimer's disease are often largely dependent on government-funded healthcare programs; therefore a plan that builds in the needs of people with Alzheimer's disease in mind has the potential to not only lower costs, but to allow for a higher standard of care. NAPA requires the creation of a National Strategic Plan to address Alzheimer's disease and the coordination of efforts to combat it across the federal government. In 2011, over 130 input sessions were held across the nation with over 3,000 Americans sharing what they felt should be included in a National Alzheimer's disease plan. On May 15, 2012, the U.S. Department of Health and Human Services released the final version of the National Plan to Address Alzheimer’s Disease. This historic achievement outlines the goal of effectively preventing Alzheimer’s disease by 2025. Click here to view the final National Alzheimer’s Plan (PDF).
HOPE for Alzheimer's Act
The Health Outcome, Planning, and Education (HOPE) for Alzheimer's Act (S. 709/H.R. 1507), reintroduced into Congress on April 11, 2013, focuses on the three key areas of diagnosis, care planning services, and medical record documentation. At the 2013 Advocacy Forum, advocates from around the country asked their elected officials to sign on as a cosponsor for the HOPE for Alzheimer's Act. For more information on the HOPE for Alzheimer's Act, read the HOPE Fact Sheet (PDF).
2013 Federal Legislative Priorities (PDF)
Back to top
What is an advocate?
Alzheimer advocates play an important role in improving the quality of care and quality of life for people with Alzheimer’s disease and their families by working to improve dementia care and services; improve access to community-based care; improve quality care in residential settings; and expand funding for research and public programs serving people with dementia.
As an advocate, you will:
- Receive regular e-mail updates about current legislative and public policy issues.
- Make calls or write to legislators to improve the quality of life for those living with Alzheimer’s and their caregivers
Add your voice to ours — become an advocate today.
Back to top
Back to top