Advocate

 photo of US Capitol

Join the cause

Excerpts of a letter from the office of Congressman Jim Matheson:

“Congressman Co-Sponsors the Health Outcomes, Planning and Education (HOPE) for the Alzheimer’s Act”

“…To better support the estimated 5.2 million Americans currently suffering from Alzheimer’s disease, and the millions more who will be diagnosed in the future, I recently co-sponsored the Health Outcomes, Planning and Education (HOPE) for Alzheimer’s Act (H.R. 1507). HOPE for Alzheimer’s aims to increase diagnosis of Alzheimer’s disease and other dementias as well as provide information for newly diagnosed patients and their families. Specifically, the HOPE Act would establish a new Medicare channel to access diagnostic and care planning services for people with Alzheimer’s disease and related dementias. It would also ensure that an Alzheimer's disease or dementia diagnosis is included in a patient’s medical record…”

There are 32,000 people living with Alzheimer’s in Utah. That number is expected to go up by 86% by 2020; 127% by 2025.   Caring for those with Alzheimer’s are 137,000 caregivers providing care at a total unpaid cost of $1,918,000.  These numbers are staggering.  

The Alzheimer’s Association--Utah Chapter invites you to become an Alzheimer advocate. Join us and speak up for the needs and rights of people with Alzheimer’s disease and their families.

Add your voice to ours — become an advocate today.

Act Now


Upcoming events

 

The Alzheimer's Association 2014 Advocacy Forum is April 7-9 in Washington, D.C.

Online registration is now open.  To register click here.

Registration Category Definitions:

  • Advocacy Forum Attendee — An advocate attending Monday, Tuesday and Wednesday sessions and all events. 
  • Alzheimer’s Association Ambassador — An advocate who serves as the key contact to a member of Congress for the Association. Ambassadors must enroll and complete the District Forum District (DFD) program. 
  • Care Partner — A care partner is identified an as individual accompanying an advocate who is living with Alzheimer’s disease or other dementia. Care partners must register at the same time of the person they are accompanying to the Forum to take advantage of the discounted registration fee. 
  • Scholarship Awardee — An advocate who is awarded a scholarship to attend the Advocacy Forum. The scholarship program is administered through the Alzheimer’s Association chapter network. Applicants must apply to their local chapter for consideration. Scholarship recipients must attend the Forum and complete the DFD program to enable distribution of funds.

Registration Fees

Date

Category

Price

Jan. 7-April 5, 2014

Advocacy Forum Attendee

$175

National Dinner Only

 

$150

April 6 — Onsite

All Categories

$250

 

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What is an advocate?

Alzheimer advocates play an important role in improving the quality of care and quality of life for people with Alzheimer’s disease and their families by working to improve dementia care and services; improve access to community-based care; improve quality care in residential settings; and expand funding for research and public programs serving people with dementia.

As an advocate, you will:

  • Receive regular updates about current legislative and public policy issues.
  • Stay on top of policy and legislative issues through alerts and updates.
  • Make calls or write to legislators to forward public policy priorities to improve quality of life for those living with Alzheimer’s.

Utah advocacy

Utah’s State Plan for Alzheimer’s Disease and Related Dementias: Summary of Goals

GOAL 1    A Dementia-aware Utah

GOAL 2    Health and Dignity for All with Dementia and Those at Risk

GOAL 3    Supported and Empowered Family Caregivers

GOAL 4    A Dementia-competent Workforce

GOAL 5    Expanded Research in Utah

For a copy of the Utah State Plan for Alzheimer's Disease and Related Disorders, please contact Melissa Lee at mlee@alz.org. 

For more information, Become an Advocate or Call the Utah Chapter at 801-265-1944.

Federal advocacy

 

    Alzheimer's Association® and the CDC Have Released New Road Map for Addressing Cognitive Health       as a Public Health Issue

Salt Lake City, UT – August 12, 2013 –The U.S. Centers for Disease Control and Prevention (CDC) and the Alzheimer's Association® unveiled The Healthy Brain Initiative: The Public Health Road Map for State and National Partnerships, 2013-2018 at the 2013 Alzheimer's Association International Conference (AAIC® 2013) in Boston on July 15, 2013.

The report encourages public health officials to act now to stem the growing Alzheimer's crisis and is a follow up to the 2007 The Healthy Brain Initiative: A National Public Health Road Map to Maintaining Cognitive Health.

"The public health community is now paying greater attention to the Alzheimer's epidemic that millions of families, including 32,000 in Utah, have been facing for decades and that is poised to drastically increase," said Jack Jenks, Executive Director of Alzheimer's Association Utah Chapter. “Once again the Alzheimer's Association and CDC have partnered to create a tool for public health officials to improve the quality of life for those families and advance cognitive health as a integral component of public health."

The original Road Map addressed cognitive health and functioning from a public health perspective and provided a framework for the public health community to engage cognitive health, cognitive impairment, and Alzheimer's disease and other dementias. More than 280 experts in the field contributed to this new Road Map that outlines specific actions that state and local public health officials can take to promote cognitive functioning, address cognitive impairment for individuals living in the community and help meet the needs of caregivers. While federal agencies play a critical role in leading and funding efforts to address Alzheimer's disease, state and local agencies organize and provide public health services at the community level.

"The goal of the Healthy Brain Initiative is to enhance understanding of the public health burden of cognitive impairment, help build evidence-based communications and programs, and translate that foundation into effective public health practices in states and communities. This Road Map provides guidance to states, communities, and national partners to plan for and respond to this major public health issue," said Lynda Anderson, PhD, Director of the Healthy Aging Program at CDC.

The Road Map includes more than 30 action steps that the public health community can take at the federal, state and local levels over the next five years to address cognitive health and cognitive impairment from a public health perspective.

Following are some of the action items, which fall under four topic areas, included in the Road Map:

Monitor and Evaluate

  • Define the needs of caregivers and persons with dementia, including Alzheimer's disease and younger onset, as they relate to employment and employers.
  • Support state and local needs assessments to identify racial/ethnic; lesbian, gay, bisexual, and transgender; socioeconomic; and geographic disparities related to cognitive health and impairment.

Educate and Empower the Nation

  • Promote advance care planning and advance financial planning to care partners, families, and individuals with dementia in the early stages before function declines.
  • Identify and promote culturally appropriate strategies designed to increase public awareness about dementia, including Alzheimer's disease, to reduce conflicting messages, decrease stigma, and promote early diagnosis.

Develop Policies and Mobilize Partnerships

  • Collaborate in the development, implementation, and maintenance of state Alzheimer's disease plans.
  • Integrate cognitive health and impairment into state and local government plans (e.g. aging, coordinated chronic disease, preparedness, falls, and transportation plans).

Assure a Competent Workforce

  • Develop strategies to help ensure that state public health departments have expertise in cognitive health and impairment related to research and best practices.
  • Support continuing education efforts that improve healthcare providers' ability to recognize early signs of dementia, including Alzheimer's disease, and to offer counseling to individuals and their care partners.

For more information on The Healthy Brain Initiative: The Public Health Road Map for State and National Partnerships, 2013-2018, visit alz.org/publichealth. For more information on Alzheimer's disease and the Alzheimer's Association, call our 24/7 Helpline at 800.272.3900 or visit alz.org/Utah.

Alzheimer's Association

The Alzheimer's Association is the world's leading voluntary health organization in Alzheimer care, support and research. Our mission is to eliminate Alzheimer's disease through the advancement of research, to provide and enhance care and support for all affected, and to reduce the risk of dementia through the promotion of brain health. Our vision is a world without Alzheimer's. Visit www.alz.org or call 800-272-3900.