Join the cause
The Alzheimer’s Association invites you to become an Alzheimer advocate. Join us and speak up for the needs and rights of people with Alzheimer’s disease and their families.
What is an advocate?
Alzheimer advocates play an important role in improving the quality of care and quality of life for people with Alzheimer’s disease and their families by working to improve dementia care and services; improve access to community-based care; improve quality care in residential settings; and expand funding for research and public programs serving people with dementia.
As an advocate, you will:
The Delaware Advocacy Committee is working throughout Delaware to enhance advocacy, increase visibility and affect positive change on behalf of Delawareans with Alzheimer's disease and related disorders, their families and caregivers. For information on the latest legislative concerns affecting persons living with Alzheimer's disease and their families and how you can get involved, please contact Katie Macklin at 800.272.3900 or via e-mail at: email@example.com.
Southeastern Pennsylvania Advocacy
Pennsylvania General Assembly - Find your senator and representative, search for bills from the current and prior legislative sessions, get directions to the Capitol building and much, much more!
Pennsylvania Alzheimer's State Plan- House Bill 2270 sponsored by State Representative Kathy Watson would create the infrastructure and accountability necessary to build dementia-capable programs for the growing number of individuals living with the disease in Pennsylvania. Through the Department of Aging the committee will provide a comprehensive state strategy to address needs of persons with Alzheimer’s disease and related disorders and address a range of issues including: dementia capable support services for people at all stages of the disease; quantifying the number of individuals with Alzheimer’s in a state; quality of long-term care; Medicaid coverage of long-term care for those who cannot afford it; availability of diagnostic services; and safety of persons who wander. HB 2270 passed the House of Representatives on October 1, 2012.
At the end of the 2012 PA Legislative Session, House Bill 2270 saw some amendment challenges and ultimately did not pass. However, Governor Corbett has agreed to sign an Executive Order to create the PA Alzheimer's Planning Committee within the Department of Aging. Keep checking back for updates and please THANK GOVERNOR CORBETT!
Pennsylvania Caregiver Support (Act 112) State Representative Matt Baker and Senator Kim Ward sponsored legislation to change the definition of "caregiver" to include caregivers who are not relatives or live outside of the home of the care recipient.
Uniform Adult Guardianship and Protective Proceedings Jurisdiction Act (Act 108) Due to the impact of dementia on a person’s ability to make decisions and in the absence of other advanced directives, people with Alzheimer’s disease may need the assistance of a guardian. Jurisdiction in adult guardianship cases often becomes complicated because multiple states, each with its own adult guardianship system, may have an interest in the case. Consequently, it may be unclear which state court has jurisdiction to decide the guardianship issue.
In response to this common jurisdictional confusion, the Uniform Law Commission developed the Uniform Adult Guardianship and Protective Proceedings Jurisdiction Act (UAGPPJA). The legislation establishes a uniform set of rules for determining jurisdiction, and thus, simplifies the process for determining jurisdiction between multiple states in adult guardianship cases. It also establishes a framework that allows state court judges in different states to communicate with each other about adult guardianship cases. Thank you Representative Tim Hennessey for sponsoring this important piece of legislation!
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Southern New Jersey Advocacy
The South Jersey Advocacy Committee interacts with state and federal legislators in an attempt to introduce, sponsor and pass legislation related to the challenges New Jersey residents face when confronting Alzheimer’s disease issues. Advocacy efforts include promoting the need for research funding; ensuring physical, psychological and financial resources for caregivers; providing the highest quality health care services and facilities; and increasing public awareness. The committee welcomes new members and extends an invitation to those who want to help lend their voice to the fight to make sure those with Alzheimer’s disease and related dementias are truly represented by their government. Contact Linda Coppinger at 800.272.3900 or firstname.lastname@example.org for information.
Attention South Jersey Residents: Governor Christie’s office is seeking candidates to serve on the NJ Alzheimer’s Disease Awareness Study Commission that is being created this year. Categories include caregivers, clergy, elder law attorneys & representatives of home care agencies, assisted living facilities & nursing homes. We at the Alzheimer’s Association Delaware Valley Chapter would like to extend an opportunity for our friends to be considered for appointment to the Commission, if you desire. For more information and on how to submit your resume, please click here: NJ Alzheimer's Disease Awareness Study Commission. Once resumes are received, the Governor’s staff will contact interested parties to obtain necessary information and will proceed to make selections to fill the available slots. The Alzheimer’s Association will not be involved in the selection process.