Join the cause
The Alzheimer’s Association invites you to become an Alzheimer advocate. Join us and speak up for the needs and rights of people with Alzheimer’s disease and their families.
DAY ON THE HILL ~ APRIL 9, 2014
REGISTRATION is now open for the 2014 DAY ON THE HILL! Join fellow passionate Alzheimer’s advocates for DAY ON THE HILL, as we take our message directly to Congress and raise our unified VOICE. On APRIL 9, 2014, we will be traveling to our nation’s capital to meet with our Members of Congress, and/or their key health staff to share our stories, discuss the Alzheimer’s disease crisis facing our nation and ask for their support of our top legislative priorities. Buses leave from Delaware, South Jersey and Southeastern PA.
Register online: 2014 Day on the Hill Registration
For more information or questions, please contact Katie Macklin at 800.272.3900 or firstname.lastname@example.org.
What is an advocate?
Alzheimer advocates play an important role in improving the quality of care and quality of life for people with Alzheimer’s disease and their families by working to improve dementia care and services; improve access to community-based care; improve quality care in residential settings; and expand funding for research and public programs serving people with dementia.
As an advocate, you will:
EXCITING ADVOCACY NEWS! The Delaware State Plan to Address Alzheimer's Disease and Related Disorders is official! Read the full plan here.
The Delaware Advocacy Committee is working throughout Delaware to enhance advocacy, increase visibility and affect positive change on behalf of Delawareans with Alzheimer's disease and related disorders, their families and caregivers. For information on the latest legislative concerns affecting persons living with Alzheimer's disease and their families and how you can get involved, please contact Katie Macklin at 800.272.3900 or via e-mail at: email@example.com.
Delaware General Assembly - Find your state legislators, search for bills from current and prior legislative sessions and more!
2014 Delaware Public Policy Priorities - Our public policy platform document outlines the main issues for which we are advocating in the DE General Assembly.
Southeastern Pennsylvania Advocacy
EXCITING ADVOCACY NEWS! Pennsylvania Alzheimer's Disease Planning Committee presents to Gov. Corbett, the Commonwealth's first-ever plan to address Pennsylvania's growing Alzheimer's public health crisis. Read the plan here.
Pennsylvania General Assembly - Find your senator and representative, search for bills from the current and prior legislative sessions, get directions to the Capitol building and much, much more!
On February 7, 2013, Governor Tom Corbett signed an Executive Order establishing the Pennsylvania Alzheimer's & Related Disorders Planning Committee. The committee was charged with creating the infrastructure and accountability necessary to build dementia-capable programs for the growing number of individuals living with the disease in Pennsylvania. Through the Department of Aging the committee will provide a comprehensive state strategy to address needs of persons with Alzheimer’s disease and related disorders and address a range of issues including: dementia capable support services for people at all stages of the disease; quantifying the number of individuals with Alzheimer’s in a state; quality of long-term care; Medicaid coverage of long-term care for those who cannot afford it; availability of diagnostic services; and safety of persons who wander. For more information on the committee, please visit the PA Department of Aging website. Thank you to State Representative Kathy Watson who led the charge on getting creating this committee through House Bill 2270 of 2012.
Pennsylvania Caregiver Support (Act 112) State Representative Matt Baker and Senator Kim Ward sponsored legislation to change the definition of "caregiver" to include caregivers who are not relatives or live outside of the home of the care recipient.
Uniform Adult Guardianship and Protective Proceedings Jurisdiction Act (Act 108) Due to the impact of dementia on a person’s ability to make decisions and in the absence of other advanced directives, people with Alzheimer’s disease may need the assistance of a guardian. Jurisdiction in adult guardianship cases often becomes complicated because multiple states, each with its own adult guardianship system, may have an interest in the case. Consequently, it may be unclear which state court has jurisdiction to decide the guardianship issue.
In response to this common jurisdictional confusion, the Uniform Law Commission developed the Uniform Adult Guardianship and Protective Proceedings Jurisdiction Act (UAGPPJA). The legislation establishes a uniform set of rules for determining jurisdiction, and thus, simplifies the process for determining jurisdiction between multiple states in adult guardianship cases. It also establishes a framework that allows state court judges in different states to communicate with each other about adult guardianship cases. Thank you Representative Tim Hennessey for sponsoring this important piece of legislation!
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Southern New Jersey Advocacy
The South Jersey Advocacy Committee interacts with state and federal legislators in an attempt to introduce, sponsor and pass legislation related to the challenges New Jersey residents face when confronting Alzheimer’s disease issues. Advocacy efforts include promoting the need for research funding; ensuring physical, psychological and financial resources for caregivers; providing the highest quality health care services and facilities; and increasing public awareness. The committee welcomes new members and extends an invitation to those who want to help lend their voice to the fight to make sure those with Alzheimer’s disease and related dementias are truly represented by their government. Contact Linda Coppinger at 800.272.3900 or firstname.lastname@example.org for information.