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Become an Advocate
New York State Advocacy
Federal Advocacy
National Alzheimer's Plan
Hope Act
How to find your Legislator
Success Stories
Upcoming Events
Contact Info
Other important links
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Get Informed & Get Active Become an Advocate for Alzheimer's
Get involved today! Join the National Alzheimer Advocate Network. Whoever you are, wherever you live, there is something you can do to make a difference.
Make your voice heard by joining with thousands of Alzheimer advocates nationwide. Join us in helping achieve our vision of creating a world without Alzheimer's disease.
Sign up below to become an Alzheimer's Advocate. Be kept up-to-date on advocacy issues and have the opportunity to participate in grassroots advocacy activities, including Action Alerts! when the Alzheimer's Association needs you to contact your elected officials.
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Ways you can help as an Advocate
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Write,
call, email or visit your legislator regarding our priority issues.
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Recruit
new Alzheimer’s Advocates.
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Volunteer
at an Association event such a Walk to End Alzheimer’s.
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Attend
our annual Advocacy day in Albany
to meet with your legislator.
Join the Cause - Become an Advocate >>
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Why I got Involved
A personal connection to the disease is what weaves together these individuals
and is what drives them to fight Alzheimer's. They have seen their mothers, fathers and other loved ones slip away from the disease – and they are determined to not let their children and grandchildren grapple with the same fate.
Listen to some of our Champions share their personal experiences and why they got involved with our mission
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| New York State Advocacy |
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The Coalition of New York State Alzheimer’s Association Chapters, founded in 1980, advocates on behalf of the 320,000 Empire State residents living with Alzheimer’s disease.
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Guardianship
Individuals with Alzheimer’s disease or a related dementia may require assistance from a guardian, particularly when no advance directives exist. Differing systems of adult guardianship throughout the nation complicate matters as state courts attempt to determine jurisdiction. The Coalition encourages New York State to adopt the Uniform Adult Guardianship and Protective Proceedings Jurisdiction Act (UAGPPJA).
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Advocate please take the following action:
Ask your Legislator: We ask that you support the passage of the UAGPPJA in the 2012 legislative session. Legislators can support the legislation in 3 ways: join the legislation as a co-sponsor when the bill is reintroduced in the Assembly and Senate; speak to Majority Leader Skelos and Speaker Silver to urge the passage of this legislation in 2013; and to vote in favor of the legislation when it comes up for a vote.
Click here to ask your Legislator to support the passage of UAGPPJA in the 2013 legislative session
Fact Sheet: Uniform Adult Guardianship and Protective Proceedings Jurisdiction Act (UAGPPJA)
Case studies in Adult Guardianship Jurisdiction
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Funding Needed
The Coalition is disappointed that the final fiscal year 2012-2013 budget does not include an additional $300,000 in funding for the Alzheimer’s Community Assistance Program (AlzCAP).
Advocate please take the following action:
Ask your Legislator: We ask that you advocate for increased funding for the Alzheimer’s Community Assistance Program (AlzCAP) in the upcoming budget. Also, if you would be willing to write a letter in support of increased funding for AlzCAP in the 2013 state budget to Governor Cuomo and to leadership in their respective houses; Majority Leader Skelos and Speaker Silver.
Contact your Legislator today: New York State Assembly
or New York State Senate
Read more about ALZCAP Funding
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| Federal Advocacy |
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National Plan on Alzheimer's
The National Alzheimer's Project Act (NAPA) is the largest legislative victory in many years for the Alzheimer's cause. Over the last several years, the Alzheimer's Association has been the leading voice in urging Congress and the White House to pass the National Alzheimer's Project Act (NAPA). The National Alzheimer's Project Act will create a coordinated national plan to overcome the Alzheimer's crisis and will ensure the coordination and evaluation of all national efforts in Alzheimer's research, clinical care, institutional, and home- and community-based programs and their outcomes.
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Federal Update Site >>
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Alzheimer's advocates were instrumental in moving NAPA through Congress. More than 50,000 e-mails, nearly 10,000 phone calls and more than 1,000 meetings by the Alzheimer's Association and its advocates led us to the historic legislative victory for the Alzheimer's community.
As a result, the first ever National Alzheimer's Plan is released — an historic achievement! The plan outlines the important goal of preventing and effectively preventing Alzheimer's disease by 2025.
Advocate please take the following action:
Please urge your member of Congress for their commitment to $100 million in resources for Alzheimer’s research, education, care and support.
Click here to write to your member of Congress
Read more about the National Plan
Read the 69 page PDF of the Plan
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The HOPE for Alzheimer's Act
The HOPE for Alzheimer’s Act would improve access to diagnosis of Alzheimer’s disease, provide information on medical and non-medical services for newly-diagnosed patients and their families, and document the diagnosis in the patient’s medical record.
Advocate please take the following action:
Please ask your members of Congress to support the HOPE for Alzheimer’s Act. As always, this message will be made much more powerful if you customize it with your personal story explaining why timely documentation of a diagnosis and care planning is so critical for families facing Alzheimer’s disease.
Click here to write your Legislator a letter today
Read more about the HOPE for Alzheimer’s Act
Find your Federal Legislator: US House of Representatives - Congress or United States Senate
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Members of Congress
Discuss Importance of Advocacy
Watch the Video >>
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Find Your Legislator
State Legislator: New York State Assembly or New York State Senate
Federal Legislator: US House of Representatives - Congress or United States Senate
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| Advocate Success Stories |
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National Alzheimer's Project Act - Now National Alzheimer's Plan
Alzheimer's advocates were instrumental in moving NAPA through Congress. More than 50,000 e-mails, nearly 10,000 phone calls and more than 1,000 meetings by the Alzheimer's Association and its advocates led us to the historic legislative victory for the Alzheimer's community.
On May 15, 2012 the Obama administration announced the release of the first ever National Alzheimer's Plan — an historic achievement! The plan outlines the important goal of preventing and effectively preventing Alzheimer's disease by 2025. Read the Association's statement.
Read more about the National Plan
Read the 69 page PDF of the Plan
Social Security - Compassionate Allowance list
As a longtime advocate for those with Alzheimer’s, the Alzheimer’s Association was at the forefront of the effort to add early-onset Alzheimer’s to the Compassionate Allowances list. This victory will give those living with the disease expedited access to Social Security Disability Insurance and Supplemental Security Income.
Read more about Alzheimer’s to Compassionate Allowances list
Gold Alert - Governor Cuomo Signs Law
On Monday, July 25, 2011 the Alzheimer's Association experienced a milestone win for adults with dementia or cognitive impairment in New York State - and we'd like to thank advocates and supporters like you for making it happen.
The new law will create a statewide alert system, for missing vulnerable adults, which will help authorities locate cognitively impaired adults who wander or go missing.
Read more about the Gold Alert
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| Upcoming Events |
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visit the Advocacy Forum >>
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Contact Us |
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For more information about our Advocacy efforts contact Kelly Harris 585.760.5405 or kelly.harris@alz.org
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| Other Important Links |
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September is World Alzheimer's Month
Walk to End Alzheimer's
TrialMatch® > Locate a Clinical Trial
Donate
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 Documents |
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2012 Federal Priorities
2012 Priorities Federal & State bulleted list
2012 State Priorities
Alzheimer's Association Memory Gardens Overview
Legislative Contact and or Meeting Summary Form
Memory Garden Inscription Form
Who Is My Legislator
If you dont have Adobe PDF Reader to read the above documents,
click here to download the latest version of Adobe PDF Reader >>
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alzheimers.gov is the government's free information resource about Alzheimer's disease and related dementias. Here you can find links to authoritative, up-to-date information from agencies and organizations with expertise in these areas.
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