The Alzheimer’s Association, Greater Maryland Chapter, invites you to become an Alzheimer's advocate. Join us and speak up for the needs and rights of people with Alzheimer’s disease and their families.
Whether it's attending the Advocacy Forum, testifying at a hearing, writing a letter, sending an e-mail you can make a big difference by making your voice heard. If you have not already done so, please join the Advocates Network. By doing so, you will receive information about what is happening on the state and federal levels that affects people with Alzheimer's disease, and you will be notified when taking action would be most effective.
Join us at the Advocacy Forum.
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Alzheimer advocates play an important role in improving the quality of care and quality of life for people with Alzheimer’s disease and their families by working to improve dementia care and services; improve access to community-based care; improve quality care in residential settings; and expand funding for research and public programs serving people with dementia.
As an advocate, you will:
To prepare for the growing numbers of people impacted by Alzheimer’s and related disorders in coming decades, Alzheimer’s Association chapters throughout the country have been advocating for the development of Alzheimer state plans. Currently more than 25 states, including Maryland, are in various stages of developing State plans.
In Maryland, this effort was initiated through budget language during the 2010 legislative session. This language stated that the “Department of Health and Mental Hygiene and the State Department of Aging will establish a work group to:
The workgroup included a diverse group of state agency representatives, health professionals, the Alzheimer’s Association and other members of the advocacy community, researchers and family members, including those impacted by young-onset dementia. Three subgroups were established to review current practice and literature and develop recommendations for each of the above work group objectives.
Preliminary findings of the groups showed that there is a lack of Maryland-specific data on ADRD, that there is under-detection and under-diagnosis of the disease, resulting in enormous associated costs, and there exist services and program gaps for those in early stage, as well as for those who develop the disease under age 65.
The final report was submitted on December 1, 2010 to the Senate Budget and Taxation Committee and the House Appropriations Committee. The primary three recommendations were: