Join the cause
The Alzheimer’s Association--Greater Kentucky & Southern Indiana invites you to become an Alzheimer advocate. Join us and speak up for the needs and rights of people with Alzheimer’s disease and their families.
Add your voice to ours — become an advocate today.
Share Your Story!
Do you have a personal story to share? Do you have ideas about how services could be improved? Please contact firstname.lastname@example.org or (502) 451-4266 to find out how you can let the policymakers know what needs to be done. Or contact your state legislator directly about important Alzheimer's issues. Here is the link for the Kentucky Legislative Research Commission for information about the state legislature and how to contact your legislators: www.lrc.state.ky.us
What is an advocate?
Alzheimer advocates play an important role in improving the quality of care and quality of life for people with Alzheimer’s disease and their families by working to improve dementia care and services; improve access to community-based care; improve quality care in residential settings; and expand funding for research and public programs serving people with dementia.
As an advocate, you will:
- Receive regular updates about current legislative and public policy issues.
- Stay on top of policy and legislative issues through alerts and updates.
- Make calls or write to legislators to forward public policy priorities to improve quality of life for those living with Alzheimer’s.
What is an Advocacy Ambassador?
Ambassadors are grassroots volunteers who serve as the main point of in-district contact for a targeted member of Congress. Ambassadors play a critical role in advocating for Alzheimer’s federal legislative goals. They work directly with national and chapter staff on federal advocacy activities.
We are not currently seeking any Ambassadors for Kentucky or Indiana.
Please contact the Greater KY and Southern IN Chapter office if you would like to volunteer or would like more information.
Below are the bills and resolutions that passed this legislative session:
Caregiver Supports Study
Senate Concurrent Resolution SCR 102/HCR 20 -
Primary Sponsors: Senator Morgan McGarvey and Representative Joni Jenkins.
This resolution will direct the Legislative Research Commission to conduct a study on family caregiving and long term supports and services in Kentucky. It will, among other things, identify polices, resources and programs available for family caregivers as well as identify additional innovative and creative means to help family caregivers to continue to provide needed in-home supports for older adults. This bill has been signed by the Governor.
First Responder Training
HR 51 -
Primary Sponsor: Representative Jim Glenn.
This resolution urges state police, city police, county sheriffs, firefighters, and emergency medical services personnel in cities of 25,000 or more to receive one hour of training annually on Alzheimer's disease and other forms of dementia. This resolution was passed unanimously in the House.
Adult Abuse Registry
SB 98/HB 256 -
Primary Sponsors: Senator Vincent Gregory, Representative Ruth Ann Palumbo, Senator Denise Harper Angel.
This bill creates a new section of KRS Chapter 209 to require entities that provide personal care services to vulnerable adults to query the Cabinet for Health and Family Services as to whether a prospective employee, contractor, or volunteer has been the subject of a validated substantiated finding of adult abuse, neglect, or exploitation; allow queries for current employees, contractors, and volunteers; allow an individual to query the cabinet to determine whether a validated substantiated finding of adult abuse, neglect, or exploitation has been entered against him or her; make false queries a criminal violation; etc.
Currently there is a registry for RNs and CNAs and this bill allows for queries of unlicensed employees as well. This bill has been signed by the Governor.
House Bill 235 -
Introduced by Representative Rick Rand.
This bill includes additional funding for 3500 Meals on Wheels slots in the Governors two-year budget proposal to the General Assembly. Funding was also included for the Kentucky Long Term Care Ombudsmen Program (KYLTCOP). The KYLTCOP is the only preventive government program aimed at helping nursing home residents maintain dignity, self-worth, quality of care and quality of life. Funding of the Long Term Care Ombudsmen program and Medicaid Expansion was included in the budget.
2015 Alzheimer’s Advocacy Day at the State Capitol - HAS BEEN CANCELED
The Kentucky Legislature has confirmed they will not meet on Tuesday, February 17 due to the inclement weather and road conditions. The 2015 KY Alzheimer's Advocacy Day will therefore not take place. Because of the short session we are unable to reschedule.
Staff from the Association will be making visits to Frankfort to continue moving our message forward. We encourage you as well to meet with your legislators, whether in Frankfort or your home district, and share your stories. Please let us know if you do make contact or if there is any way we can help you prepare for a successful meeting. Thank you.
Thank you again to everyone who joined us on January 29, 2014 at the State Capitol and participated in our Kentucky Alzheimer's Advocacy Day. Because of you, we are making progress. Because of you, we WILL achieve our vision of a world without Alzheimer’s.
Contact your state legislator about important Alzheimer's issues. Here is the link for the Kentucky Legislative Research Commission for information about the state legislature and how to contact your legislators: www.lrc.state.ky.us
advocate events and information can be viewed here
Chapter advocates from Kentucky and southern Indiana join with hundreds of others from across the country at the annual Alzheimer's Association Advocacy Forum in Washington, D.C. each spring. We meet with our members of Congress and their staff to personally express:
2014 Alzheimer's Association Advocacy Forum
- The urgency of increasing the allocation for Alzheimer research in the federal budget: medical research is needed for better treatments and to develop ways to prevent the disease; and
- The need to help caregivers, increase detection and diagnosis of Alzheimer's disease and other dementias, and provide access, information and support for newly diagnosed patients and their families.
Alzheimer's Association Chapter Director of Community Outreach Bari Lewis and Ambassadors Colman and Victoria Elridge met with Congressman Andy Barr.
Visiting with Natalie Burkhardt in Senator Rand Paul's office.
Our delegation with Senator Mitch McConnell.
Mark your calendars and plan to join us at the 2015 Advocacy Forum March 23-25 in Washington, D.C. This is an opportunity to learn about key policy priorities and meet face-to-face with your Members of Congress to educate them about Alzheimer's disease and its potentially devastating effect on our country's economy, businesses and citizens.