Join the cause
The Alzheimer’s Association--Greater Kentucky & Southern Indiana invites you to become an Alzheimer advocate. Join us and speak up for the needs and rights of people with Alzheimer’s disease and their families.
Add your voice to ours — become an advocate today.
Share Your Story!
Do you have a personal story to share? Do you have ideas about how services could be improved? Please contact firstname.lastname@example.org or (502) 451-4266 to find out how you can let the policymakers know what needs to be done. Or contact your state legislator directly about important Alzheimer's issues. Here is the link for the Kentucky Legislative Research Commission for information about the state legislature and how to contact your legislators: www.lrc.state.ky.us
What is an advocate?
Alzheimer advocates play an important role in improving the quality of care and quality of life for people with Alzheimer’s disease and their families by working to improve dementia care and services; improve access to community-based care; improve quality care in residential settings; and expand funding for research and public programs serving people with dementia.
As an advocate, you will:
- Receive regular updates about current legislative and public policy issues.
- Stay on top of policy and legislative issues through alerts and updates.
- Make calls or write to legislators to forward public policy priorities to improve quality of life for those living with Alzheimer’s.
What is an Advocacy Ambassador?
Ambassadors are grassroots volunteers who serve as the main point of in-district contact for a targeted member of Congress. Ambassadors play a critical role in advocating for Alzheimer’s federal legislative goals. They work directly with national and chapter staff on federal advocacy activities.
We are not currently seeking any Ambassadors for Kentucky or Indiana.
Please contact the Greater KY and Southern IN Chapter office if you would like to volunteer or would like more information.
Below are the bills and resolutions that passed this legislative session:
Caregiver Supports Study
Senate Concurrent Resolution SCR 102/HCR 20 -
Primary Sponsors: Senator Morgan McGarvey and Representative Joni Jenkins.
This resolution will direct the Legislative Research Commission to conduct a study on family caregiving and long term supports and services in Kentucky. It will, among other things, identify polices, resources and programs available for family caregivers as well as identify additional innovative and creative means to help family caregivers to continue to provide needed in-home supports for older adults. This bill has been signed by the Governor.
First Responder Training
HR 51 -
Primary Sponsor: Representative Jim Glenn.
This resolution urges state police, city police, county sheriffs, firefighters, and emergency medical services personnel in cities of 25,000 or more to receive one hour of training annually on Alzheimer's disease and other forms of dementia. This resolution was passed unanimously in the House.
Adult Abuse Registry
SB 98/HB 256 -
Primary Sponsors: Senator Vincent Gregory, Representative Ruth Ann Palumbo, Senator Denise Harper Angel.
This bill creates a new section of KRS Chapter 209 to require entities that provide personal care services to vulnerable adults to query the Cabinet for Health and Family Services as to whether a prospective employee, contractor, or volunteer has been the subject of a validated substantiated finding of adult abuse, neglect, or exploitation; allow queries for current employees, contractors, and volunteers; allow an individual to query the cabinet to determine whether a validated substantiated finding of adult abuse, neglect, or exploitation has been entered against him or her; make false queries a criminal violation; etc.
Currently there is a registry for RNs and CNAs and this bill allows for queries of unlicensed employees as well. This bill has been signed by the Governor.
House Bill 235 -
Introduced by Representative Rick Rand.
This bill includes additional funding for 3500 Meals on Wheels slots in the Governors two-year budget proposal to the General Assembly. Funding was also included for the Kentucky Long Term Care Ombudsmen Program (KYLTCOP). The KYLTCOP is the only preventive government program aimed at helping nursing home residents maintain dignity, self-worth, quality of care and quality of life. Funding of the Long Term Care Ombudsmen program and Medicaid Expansion was included in the budget.
2014 Alzheimer’s Advocacy Day at the State Capitol
Governor Beshear proclaimed January 29, 2014 Alzheimer's Awareness and Advocacy Day in Kentucky.
On that day, more than fifty Alzheimer's Association staff and advocates braved the cold to share our stories with legislators at our state capitol. Because of you, we were able to meet with and/or leave informational materials with all 138 Kentucky senators and representatives!
Thank you for being an important voice for the care and support needs of persons living with Alzheimer's and related dementias and their loved ones. Visits by our Ambassadors, advocates and staff to our legislators at both the state and federal level really do make a tremendous difference in moving the Alzheimer's cause forward (as evidenced by the recent inclusion of the $122 million new dollars for Alzheimer's in the FY14 national budget).
However, if you could not attend our 2014 Kentucky Alzheimer's Advocacy Day, there are always more opportunities to make your voice heard. Any time of year, you can write letters and visit your senator/representative. Then, please let us know if and when you do along with any details of what happened during your visit(s).
Thank you again to everyone who joined us at the State Capitol and participated in our Advocacy Day. Because of you, we are making progress. Because of you, we WILL achieve our vision of a world without Alzheimer’s.
Contact your state legislator about important Alzheimer's issues. Here is the link for the Kentucky Legislative Research Commission for information about the state legislature and how to contact your legislators: www.lrc.state.ky.us
advocate events and information can be viewed here
Indiana 2015 Alzheimer’s Association Public Policy Platform
As our population is aging, more and more individuals are afflicted with Alzheimer’s disease. Over 5 million Americans, including 120,000 Hoosiers, have the disease. Coping with this disease takes a terrible toll on the individuals affected, their families and caregivers, as well as impacting our healthcare system, businesses and communities. Indiana’s policymakers must address this growing catastrophe!
Implement the Recommendations Contained in the Indiana Plan for Alzheimer’s Disease and Related Dementias
The Governor’s Task Force on Alzheimer’s Disease adopted the Indiana Plan for Alzheimer’s Disease and Related Dementias on October 26, 2012. This State Plan contains the following six goals: 1) raising awareness, 2) connecting patients and families with services, 3) improving quality of care, 4) increasing public safety, 5) enhancing research and data, and 6) implementing the plan. The Plan forwards ten priority priorities for action, along with several lesser action items. The Commission on Aging’s Alzheimer’s State Plan Subcommittee will monitor the implementation, with the Chapter taking the lead on several of the recommendations. We will work closely with the Division of Aging and their FY 2015-2018 State Plan document.
Improve Adult Guardianship Jurisdiction
Support the Indiana Adult Guardianship Task Force to 1) continue funding for the State Office of Adult Guardianship at the Indiana Supreme Court, 2) secure funding for the certified volunteer programs, and 3) establish a statewide adult guardianship registry.
Maintain/Improve Access and Care for Those with Alzheimer’s and Dementia
- Participate with the General Assembly, the Medicaid Oversight Commission, the CHOICE Board, the Commission on Aging, and the Health Finance Commission as they implement health care reform to ensure that the needs of those afflicted with dementia are represented. Support increased funding for Indiana’s Nursing Home Ombudsman Program.
Ensure Quality Dementia Care and Services
- Continue work with the Indiana Law Enforcement Academy and the Indiana State Police to address dementia within the training curriculums.
- Begin to implement dementia training through Homeland Security for first responders (fire and EMS personnel).
- Work with the nursing home industry and the Indiana State Department of Health (SDOH) to implement the new certified nurse aide training requirements, abuse/neglect training, and the SDOH/University of Indianapolis nursing home training modules.
- Participate in the Family & Social Services Administration’s Interdisciplinary Committee for Adult Protective Services (APS), the Department of Justice’s Technical Assistance Grant for APS, and the Elder Justice Work Group to evaluate and improve Indiana’s adult protective services.
- Work with the Indiana State Department of Health and the National Association to analyze and disseminate the data from the 2012 and 2013 Cognitive Impairment Module and the 2012 Caregiving Module from the Behavioral Risk Factor Surveillance System (BRFSS).
- Work with the Indiana State Department of Health to include the Caregiving Module in the 2015 BRFSS survey and the Cognitive Decline Module in 2016.
Increase Funding for Alzheimer’s Disease Research at the National Institutes of Health
- Solving the Alzheimer’s crisis requires addressing the chronic underinvestment in Alzheimer’s disease research funding. Support $200 million in additional Alzheimer’s research funding for FY 15.
- Obtain co-sponsors for the Alzheimer’s Accountability Act (H.R. 4351/S. 2192)
Support the Implementation of the National Alzheimer’s Project Act
- Work with the National Association and HHS to gather input and create an action plan to address Alzheimer’s on a national level.
Improve Detection, Diagnosis and Care Planning
- The Health Outcomes, Planning and Education (HOPE) for Alzheimer’s Act (H.R. 1507/S. 709) will provide Medicare reimbursement for a bundled package of services in order to increase detection and diagnosis, and provide access to information and support for newly-diagnosed patients and their families.
- Obtain co-sponsors for the HOPE Act.
Chapter advocates from Kentucky and southern Indiana join with hundreds of others from across the country at the annual Alzheimer's Association Advocacy Forum in Washington, D.C. each spring. We meet with our members of Congress and their staff to personally express:
2014 Alzheimer's Association Advocacy Forum
- The urgency of increasing the allocation for Alzheimer research in the federal budget: medical research is needed for better treatments and to develop ways to prevent the disease; and
- The need to help caregivers, increase detection and diagnosis of Alzheimer's disease and other dementias, and provide access, information and support for newly diagnosed patients and their families.
Alzheimer's Association Chapter Director of Community Outreach Bari Lewis and Ambassadors Colman and Victoria Elridge met with Congressman Andy Barr.
Visiting with Natalie Burkhardt in Senator Rand Paul's office.
Our delegation with Senate Minority Leader Mitch McConnell.
Mark your calendars and plan to join us at the 2015 Advocacy Forum March 22-25 in Washington, D.C. This is an opportunity to learn about key policy priorities and meet face-to-face with your Members of Congress to educate them about Alzheimer's disease and its potentially devastating effect on our country's economy, businesses and citizens.