Advocate

 


 photo of US Capitol

 

Join the cause

The Alzheimer’s Association-Greater Indiana Chapter invites you to become an Alzheimer advocate today. Join us and speak up for the needs and rights of people with Alzheimer’s disease and their families.

Add your voice to ours — become an advocate today.

Act Now


National Alzheimer's Plan (NAPA) Released

On May 15, 2012, the Department of Health and Human Services (HHS) released the final copy of the National Plan to Address Alzheimer's Disease.  The full 60 page report is available at http://www.alz.org/napa

Upcoming events

The Greater Indiana Chapter's 2014 Public Policy Platform has been approved by the Board.  Please e-mail Michael Sullivan at msullivan@alz.org if you would like to receive a copy.

Our major legislative issues in the 2013 Indiana General Assembly were:

   -Requiring law enforcement to receive training about Alzheimer's/dementia (HB 1044)

   -Implementation of the Physician Orders for Scope of Treatment (HB 1182)

   -Creation and funding of an Office for Adult Guardianship under the Indiana Supreme Court    (HB 1001, which is the budget bill).

Bills are available at www.in.gov   Click on Legislature in the right hand bottom corner.  Then click Bills & Resolutions; click Overview; and then insert the bill number to see the action and obtain a copy of the bill.

 

Alzheimer's Disease Task Force Report

In January, 2011, then-Governor Mitch Daniels re-commissioned the Governor's Task Force on Alzheimer's Disease and charged the Task Force with creating an Alzheimer's Disease State Plan.  The Task Force is comprised of ten individuals with personal and professional experience with the disease.  They are:

Stephen Adair     Dr. Cathy Schubert     Dr. Fred Unverzagt     Kathy Segrist    Jana Powell      

Dr. Anne Hake    Ellen Dunnigan   Scott Bevington   Michael Sullivan   Rosella Bennett

They were joined by four members of the General Assembly (Sen. Jean Leising, Sen. Tim Skinner, Rep. Mike Speedy and Rep. John Day), and Terry Whitson of the State Department of Health, Faith Laird from the Division of Aging, and Lynn Smith from the Department of Mental Health.  The Task Force first met in March of 2011, and spent the next fifteen months gathering data, listening to various experts, and holding town hall input sessions.  The State Plan was approved by the Task Force on October 26, 2012.

The Alzheimer's Disease State Plan creates the infrastructure and accountability necessary to make Indiana a dementia-friendly state.  Issues addressed include raising public awareness, legal and financial issues, early detection, care coordination and case management, public safety and research.

We wish to thank Governor Daniels, the Task Force members, and the numerous speakers for their input to create this report.  Please contact Michael Sullivan at msullivan@alz.org to receive a copy of the report.

What is an advocate?

Alzheimer advocates play an important role in improving the quality of care and quality of life for people with Alzheimer’s disease and their families by working to improve dementia care and services; improve access to community-based care; improve quality care in residential settings; and expand funding for research and public programs serving people with dementia.

As an advocate, you will:

  • Receive regular updates about current legislative and public policy issues.
  • Stay on top of policy and legislative issues through alerts and updates.
  • Make calls or write to legislators to forward public policy priorities to improve quality of life for those living with Alzheimer’s.

Indiana advocacy

The Indiana General Assembly
This is the website for the Indiana General Assembly.

Indiana State Department of Health Nursing Home Report Card
This site rates all of the nursing homes in the state of Indiana.

Federal advocacy