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What is an Advocate?
Alzheimer advocates play an important role in improving the quality of care and quality of life for people with Alzheimer’s disease and their families by working to improve dementia care and services; improve access to community-based care; improve quality care in residential settings; and expand funding for research and public programs serving people with dementia.
As an advocate, you will:
- Receive regular updates about current legislative and public policy issues.
- Stay on top of policy and legislative issues through alerts and updates.
- Make calls or write to legislators to forward public policy priorities to improve quality of life for those living with Alzheimer’s.
Join the Cause
The Alzheimer’s Association, Greater Iowa Chapter invites you to become an Alzheimer's advocate. Join us and speak up for the needs and rights of people with Alzheimer’s disease and their families.
Add your voice to ours — become an advocate today.
Public Legislative Forums
Multiple Dates, Times, and Locations across Iowa
Attend a public legislative forum in your area today to advocate your legislators on the importance of addressing Alzheimer's disease. With themes like "Eggs & Issues" and "Legislative Coffee," these events are something you can participate in throughout the year to advocate for those affected by the disease.
View list of upcoming public forums here
Advocacy is not just one day visiting our State Capitol. Visit your legislator at local events, make phone calls, send emails and letters to encourage them to support legislation that will positively impact the lives of those afflicted with this devastating disease.
Find your legislator here
Recent Advocacy Successes
Iowa Support of the Alzheimer's Accountability Act
In 2050, more than 16 million Americans will have Alzheimer’s disease, creating an enormous strain on the
health care system, families, and the federal budget. Recognizing this growing crisis, Congress
unanimously passed and President Obama signed into law the National Alzheimer’s Project Act (NAPA),
calling for the creation of a National Alzheimer’s Plan. In May 2012, the first-ever National Plan was
released, with a goal of preventing and effectively treating Alzheimer’s disease by 2025. To reach that goal,
the NIH has established research milestones and timelines. But what the NIH has not established is the
level of funding necessary to reach them. The Alzheimer’s Accountability Act (S. 2192/H.R. 4351) would
require the scientists at the NIH to submit an annual Alzheimer’s research budget proposal directly to
Congress, specifying the resources needed. That way, Congress will know what the scientists need.
Last month, a delegation of advocates from Iowa traveled to Washington, DC to meet with the Iowa Congressional delegation. Advocates asked each member of Congress to co-sponsor this important legislation. We are pleased to announce that three Iowa Congressmen have agreed to co-sponsor the Alzheimer's Accountability Act. If these Congressman are in your district, please take a moment to email and thank them for joining our fight against Alzheimer's disease.
Congressman Bruce Braley, IA01, http://braley.house.gov/contact
Congressman Steve King, IA04, http://steveking.house.gov/contact
Congressman Dave Loebsack, IA02, https://loebsack.house.gov/forms/writeyourrep/
The Alzheimer's Association would love to have 100% Congressional participation in sponsoring this important legislation. If your Congressman or Senator has not signed on, please take a moment and contact them and ask them to co-sponsor the Alzheimer's Accountability Act (S. 2192/H.R. 4351).
Congressman Tom Latham, IA03, http://latham.house.gov/contact/
Senator Chuck Grassley, http://www.grassley.senate.gov/contact/contact.cfm
Senator Tom Harkin, http://www.harkin.senate.gov/contact_opinion.cfm
Alzheimer's disease is a pivotal public health issue that state policymakers cannot ignore.
- Today, more than 5 million Americans are living with Alzheimer's disease, and that number is expected to rise to as many as 16 million by 2050.
- Average per-person Medicaid spending on seniors with Alzheimer's and other dementias is 19 times higher than average per-person Medicaid spending on seniors without these conditions.
- In 2014, the direct costs to American society of caring for those with Alzheimer's will total an estimated $214 billion, including $150 billion in costs to Medicaid and Medicare. Unless something is done, costs to Medicaid and Medicare could increase by as much as 500 percent by 2050.
Most states have a strategic plan to address cancer, diabetes, or pandemic flu. States must be equally prepared for the Alzheimer's epidemic.
- A State Alzheimer's Disease Plan is a written report drafted by a group of interested parties, sanctioned by the state government, that explores the current impact of Alzheimer's disease in the state and outlines what steps the state must take over the next 5 to 10 years to improve its services for and support to people with Alzheimer's and their families.
Iowa passed their state plan in 2007, with the assistance of the Alzheimer's Disease Task Force. In 2011, the plan was reviewed and updated and the Alzheimer's Disease Response Strategy was developed.
View the 2007 Iowa State Alzheimer's Disease Plan
View the 2011 Alzheimer's Disease Response Strategy legislation here
Read the 2014 Iowa Public Policy Priorities here
For more information in Illinois public policy events, please visit the Greater Illinois Chapter Advocacy page.
For more information on Illinois public policy issues and updates, please visit the Greater Illinois Chapter Advocacy page.
Read the 2014 Illinois Public Policy Priorities here
27th Annual Alzheimer's Advocacy Forum
March 22-25, 2015
Washington Marriott Wardman Park
Join the Iowa delegation for the 27th Annual Alzheimer's Advocacy Forum in 2015. Help us make a difference by joining the faces of Alzheimer's. Come to Washington, D.C., as we put a spotlight on the disease and compel our policymakers to engage in the fight. Face the facts: it's time to take action against Alzheimer's.
Check back soon for more information on the 2015 Alzheimer's Advocacy Forum
Senate Subcommittee Advances FY2015 Health Funding Bill - Includes Additional $100 Million for Alzheimer’s Research
On June 10th, the Labor-Health and Human Services Appropriations Subcommittee held a markup of the FY2015 funding bill. The bill contained an additional $100 million increase in funding for Alzheimer’s research over the FY2014 level. This is the first step in a long process. As was the case last year, the process is a marathon, not a sprint. The Senate Appropriations Committee has not set a timeline for full committee action on the bill, but Majority Leader Harry Reid (D-NV) has scheduled time on the weeks of June 16th and 23rd to move any funding bills. The House has not yet released a timeline for their funding bills. The fiscal year ends on September 30th. Stay tuned and as we continue our efforts together to move Alzheimer’s funding forward!
Support Grows for the Alzheimer’s Accountability Act
As of June 13th, the Alzheimer’s Accountability Act, S.2192/H.R. 4351, now has 127 bipartisan cosponsors in the House of Representatives and 14 bipartisan cosponsors in the Senate. Support continues to grow with many members of the Appropriations Committee, Energy and Commerce Committee and HELP Committee signing on in support of the bill. Thank you for your continued efforts!
Senator Tom Harkin chairs this committee - contact him today to encourage his support at http://www.harkin.senate.gov/contact_opinion.cfm
Update on the HOPE for Alzheimer's Act (S. 709/ H.R. 1507)
The HOPE for Alzheimer's Act (S.709/H.R. 1507) continues to collect bipartisan support this Congress. We are pleased to report that HOPE now stands at 198 cosponsors in the House. Senate activity has picked up since May, adding an additional three cosponsors, bringing us to a total of 30 Senators. The Summer is heating up and so should support for HOPE! Please continue to reach out to any previous cosponsors who have not yet signed onto the bill. Our thanks to you for all your hard work. Please, keep it up!
Record $122 million increase for Alzheimer's disease signed into law
At the urging of the Alzheimer's Association and its more than 600,000 advocates, the funding bill signed into law on January 17, 2014, by President Obama contained an unprecedented $122 million increase for Alzheimer's research, education, outreach, and caregiver support.
Read full press release here
National Plan to Address Alzheimer's Disease
On May 15, 2012, the first ever National Plan to Address Alzheimer's Disease was released by the Administration with the important goal of preventing and effectively treating Alzheimer's by 2025. Your efforts got us here. You signed the petition, advocated on Capitol Hill, and told officials that Alzheimer's couldn't wait. Your voices were heard. Thank you!
View the National Alzheimer's Plan video here
Read the National Alzheimer's Plan here
1. Increase the commitment to Alzheimer's research
-- Call your members of congress and ask for increased funding
2. Ensure accountability in the National Alzheimer's Plan
-- Ask your legislators to support the Alzheimer's Accountability Act
3. Improve access to diagnosis and care planning
-- View information about the HOPE for Alzheimer's act below
Read the 2014 Federal Public Policy Priorities here
View and download Federal Public Policy Priorities visual aid here
Alzheimer's Accountability Act
The Alzheimer's Accountability Act (H.R. 4351/S. 2192) represents a bipartisan effort to ensure that Congress is equipped with the best possible information to set funding priorities and reach the goal of the National Plan to Address Alzheimer's Disease to prevent and effectively treat Alzheimer's by 2025.
View the Alzheimer's Accountability Video here
View the Alzheimer's Accountability Act fact sheet here
HOPE for Alzheimer's Act
The Health Outcomes, Planning, and Education (HOPE) for Alzheimer's Act (S.709/H.R.1507), was introduced to improve diagnosis of Alzheimer's disease and increase access to information on care and support for newly diagnosed individuals and their families - providing essential support for those facing this devastating, debilitating disease.
View the HOPE for Alzheimer's Act video here
View the HOPE for Alzheimer's Act fact sheet here
- Advocate Guide - This document is a guide to advocates who attended our Alzheimer's Advocacy Forum, but it also serves as a great resource for new advocates.
- Collateral/Visual Aid - This document provides a graphical view of the need for Alzheimer's research funding. It is intended to be shown to elected officials during in-person meetings.
The Economics of Alzheimer's Disease
To help you better communicate with elected officials about the critical need for additional resources for Alzheimer's research, the Alzheimer's Association has developed a handout document (and a Spanish language version) emphasizing our key message, "Alzheimer's is the costliest disease in America and is set to increase like no other."
View The Economics of Alzheimer's Disease video here
View The Economics of Alzheimer's Disease handout here
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