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What is an Advocate?
Alzheimer advocates play an important role in improving the quality of care and quality of life for people with Alzheimer’s disease and their families by working to improve dementia care and services; improve access to community-based care; improve quality care in residential settings; and expand funding for research and public programs serving people with dementia.
As an advocate, you will:
- Receive regular updates about current legislative and public policy issues.
- Stay on top of policy and legislative issues through alerts and updates.
- Make calls or write to legislators to forward public policy priorities to improve quality of life for those living with Alzheimer’s.
Join the Cause
The Alzheimer’s Association, Greater Iowa Chapter invites you to become an Alzheimer's advocate. Join us and speak up for the needs and rights of people with Alzheimer’s disease and their families.
Add your voice to ours — become an advocate today.
Public Legislative Forums
Multiple Dates, Times, and Locations across Iowa
Attend a public legislative forum in your area today to advocate your legislators on the importance of addressing Alzheimer's disease. With themes like "Eggs & Issues" and "Legislative Coffee," these events are something you can participate in throughout the year to advocate for those affected by the disease.
View list of upcoming public forums here
Advocacy is not just one day visiting our State Capitol. Visit your legislator at local events, make phone calls, send emails and letters to encourage them to support legislation that will positively impact the lives of those afflicted with this devastating disease.
Find your legislator here
Alzheimer's disease is a pivotal public health issue that state policymakers cannot ignore.
- Today, more than 5 million Americans are living with Alzheimer's disease, and that number is expected to rise to as many as 16 million by 2050.
- Average per-person Medicaid spending on seniors with Alzheimer's and other dementias is 19 times higher than average per-person Medicaid spending on seniors without these conditions.
- In 2014, the direct costs to American society of caring for those with Alzheimer's will total an estimated $214 billion, including $150 billion in costs to Medicaid and Medicare. Unless something is done, costs to Medicaid and Medicare could increase by as much as 500 percent by 2050.
Most states have a strategic plan to address cancer, diabetes, or pandemic flu. States must be equally prepared for the Alzheimer's epidemic.
- A State Alzheimer's Disease Plan is a written report drafted by a group of interested parties, sanctioned by the state government, that explores the current impact of Alzheimer's disease in the state and outlines what steps the state must take over the next 5 to 10 years to improve its services for and support to people with Alzheimer's and their families.
Iowa passed their state plan in 2007, with the assistance of the Alzheimer's Disease Task Force. In 2011, the plan was reviewed and updated and the Alzheimer's Disease Response Strategy was developed.
View the 2007 Iowa State Alzheimer's Disease Plan
View the 2011 Alzheimer's Disease Response Strategy legislation here
Read the 2014 Iowa Public Policy Priorities here
For more information in Illinois public policy events, please visit the Greater Illinois Chapter Advocacy page.
For more information on Illinois public policy issues and updates, please visit the Greater Illinois Chapter Advocacy page.
Read the 2014 Illinois Public Policy Priorities here
27th Annual Alzheimer's Advocacy Forum
March 22-25, 2015
Washington Marriott Wardman Park
Join the Iowa delegation for the 27th Annual Alzheimer's Advocacy Forum in 2015. Help us make a difference by joining the faces of Alzheimer's. Come to Washington, D.C., as we put a spotlight on the disease and compel our policymakers to engage in the fight. Face the facts: it's time to take action against Alzheimer's.
Check back soon for more information on the 2015 Alzheimer's Advocacy Forum
Record $122 million increase for Alzheimer's disease signed into law
At the urging of the Alzheimer's Association and its more than 600,000 advocates, the funding bill signed into law on January 17, 2014, by President Obama contained an unprecedented $122 million increase for Alzheimer's research, education, outreach, and caregiver support.
Read full press release here
National Plan to Address Alzheimer's Disease
On May 15, 2012, the first ever National Plan to Address Alzheimer's Disease was released by the Administration with the important goal of preventing and effectively treating Alzheimer's by 2025. Your efforts got us here. You signed the petition, advocated on Capitol Hill, and told officials that Alzheimer's couldn't wait. Your voices were heard. Thank you!
View the National Alzheimer's Plan video here
Read the National Alzheimer's Plan here
1. Increase the commitment to Alzheimer's research
-- Call your members of congress and ask for increased funding
2. Ensure accountability in the National Alzheimer's Plan
-- Ask your legislators to support the Alzheimer's Accountability Act
3. Improve access to diagnosis and care planning
-- View information about the HOPE for Alzheimer's act below
Read the 2014 Federal Public Policy Priorities here
View and download Federal Public Policy Priorities visual aid here
Alzheimer's Accountability Act
The Alzheimer's Accountability Act (H.R. 4351/S. 2192) represents a bipartisan effort to ensure that Congress is equipped with the best possible information to set funding priorities and reach the goal of the National Plan to Address Alzheimer's Disease to prevent and effectively treat Alzheimer's by 2025.
View the Alzheimer's Accountability Act fact sheet here
HOPE for Alzheimer's Act
The Health Outcomes, Planning, and Education (HOPE) for Alzheimer's Act (S.709/H.R.1507), was introduced to improve diagnosis of Alzheimer's disease and increase access to information on care and support for newly diagnosed individuals and their families - providing essential support for those facing this devastating, debilitating disease.
View the HOPE for Alzheimer's Act video here
View the HOPE for Alzheimer's Act fact sheet here
- Advocate Guide - This document is a guide to advocates who attended our Alzheimer's Advocacy Forum, but it also serves as a great resource for new advocates.
- Collateral/Visual Aid - This document provides a graphical view of the need for Alzheimer's research funding. It is intended to be shown to elected officials during in-person meetings.
The Economics of Alzheimer's Disease
To help you better communicate with elected officials about the critical need for additional resources for Alzheimer's research, the Alzheimer's Association has developed a handout document (and a Spanish language version) emphasizing our key message, "Alzheimer's is the costliest disease in America and is set to increase like no other."
View The Economics of Alzheimer's Disease video here
View The Economics of Alzheimer's Disease handout here
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