Greater Iowa Chapter Advocacy Center


 



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What is an Advocate?

Alzheimer's advocates play an important role in improving the quality of care and quality of life for people with Alzheimer’s disease and their families by working to improve dementia care and services; improve access to community-based care; improve quality care in residential settings; and expand funding for research and public programs serving people with dementia.

As an advocate, you will:

  • Receive regular updates about current legislative and public policy issues.
  • Stay on top of policy and legislative issues through alerts and updates.
  • Make calls or write to legislators to forward public policy priorities to improve quality of life for those living with Alzheimer’s.
     

Join the Cause

The Alzheimer’s Association, Greater Iowa Chapter invites you to become an Alzheimer's advocate.  Join us and speak up for the needs and rights of people with Alzheimer’s disease and their families.

Add your voice to ours — become an advocate today.
 

Iowa Advocacy

News

Chris Sutton - 2014 Walk Advocacy Cards2,500 Alzheimer's advocacy cards delivered to Sen. Grassley's office

On December 17, Alzheimer's Association Ambassador Chris Sutton delivered over 2,500 signed Alzheimer's advocacy cards to Senator Chuck Grassley's Regional Director, Aaron McKay.  

These cards were signed by 2014 Walk to End Alzheimer's participants at events across the state as a call-to-action to legislators to make Alzheimer's disease a public policy priority.  

Chris wrote a book about caring for her husband, who lost his battle to early-onset Alzheimer's disease at the age of 60 in 2011, and has since become a leading voice to legislators in the fight against Alzheimer's in Iowa.  Add your voice to ours — become an advocate today.


Upcoming Events

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Day at the Hill
Tuesday, March 17
First Floor Rotunda
Iowa State Capitol (map)
Advocate Rally 10 a.m.
Legislative Meetings All Day 

WEAR PURPLE FOR THE CAUSE

Use your VOICE to advocate for Iowans living with Alzheimer's and their families! This is an opportunity for Iowa advocates to join together and let policymakers know Alzheimer's disease priorities for Iowa are important for them!  

  • Online advocacy training provided
  • Tell legislators your story and how Alzheimer's has affected you
  • Legislators invited for coffee and conversation at our booth
  • Registration is FREE but required. Indicate need for carpooling.

REGISTER FREE HERE:
Walk - Register Now 

Public Legislative Forums
Multiple Dates, Times, and Locations across Iowa

Attend a public legislative forum in your area today to advocate your legislators on the importance of addressing Alzheimer's disease.  With themes like "Eggs & Issues" and "Legislative Coffee," these events are something you can participate in throughout the year to advocate for those affected by the disease.


Ongoing Advocacy

Advocacy is not just one day visiting our State Capitol.  Visit your legislator at local events, make phone calls, send emails and letters to encourage them to support legislation that will positively impact the lives of those afflicted with this devastating disease.

Find your legislator here


Recent Advocacy Successes

THANK YOU for your support of the Alzheimer's Accountability Act!
Because of actions from Alzheimer's advocates like you here in Iowa and across the nation, Congress has included the Alzheimer's Accountability Act in its 2015 omnibus funding bill.  Because of this action, Congress will be equipped with the best information to determine necessary Alzheimer’s research funding levels in each year leading up to 2025 to achieve the primary goal of the National Plan to Address Alzheimer’s Disease, creating a means to prevent and effectively treat Alzheimer’s disease.  THANK YOU for your support!


State of Iowa Advocacy Priorities

Ensure that Iowa's public health system is dementia-capable.

  • Iowa Department of Public Health (IDPH) work in collaboration with the Alzheimer's Association to educate public health agencies about Alzheimer's.
  • Conduct public awareness campaign to raise awareness of warning signs and encourage early diagnosis of the disease.
  • Include the Cognitive Decline Module and Caregiver Module in the annual Behavioral Risk Factor Surveillance System (BRFSS) and distribute to public health planners. 

Provide income tax credits to those who care for family members with Alzheimer's disease and other dementias.

  • Income tax credits could range from $500-1,000 per family to ease the financial burden of caring for someone with Alzheimer's. 

Ensure that training in dementia care is provided to all individuals employed in the delivery of care from home and community-based services and in residential care settings.

  • Review of current training standards and advocates for new standards based on individuals achieving competencies in caring vs. completing a set number of training hours. 

Preserve the elements of Medicaid essential to those with Alzheimer's disease and their families. 

  • Medicaid pays for medical care for people with very low income and long-term care for people who have used up most of their own assets.
  • Monitor changes to Medicaid in Iowa and respond as needed to preserve or improve funding for those with Alzheimer's and their families. 

View the full 2015 Iowa Public Policy Priorities here
 

Illinois Advocacy

05022014_illinois_captial.jpgUpcoming Events

For more information in Illinois public policy events, please visit the Greater Illinois Chapter Advocacy page


Advocacy Priorities

For more information on Illinois public policy issues and updates, please visit the Greater Illinois Chapter Advocacy page.

Read the 2015 Illinois Public Policy Priorities Here
 

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Upcoming Events

27th Annual Alzheimer's Advocacy Forum
March 22-25, 2015

Washington Marriott Wardman Park
Washington, D.C
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Join the Iowa delegation for the 27th Annual Alzheimer's Advocacy Forum in 2015.  Help us make a difference by joining the faces of Alzheimer's.  Come to Washington, D.C., as we put a spotlight on the disease and compel our policymakers to engage in the fight.  Face the facts: it's time to take action against Alzheimer's.

Check back soon for more information on the 2015 Alzheimer's Advocacy Forum


Advocacy Successes

Congress passes Alzheimer's Accountability Act (H.R. 4351/S. 2192)
As the largest Alzheimer’s advocacy organization in the world, the Alzheimer’s Association, and its relentless advocates, applaud Congress for creating a formal process to ensure that scientific judgment will guide them in future Alzheimer’s research funding decisions. This critical provision comes from the Alzheimer’s Accountability Act (H.R. 4351/S. 2192), which was fully incorporated within the fiscal year 2015 funding bill signed into law by the President. Because of this action, Congress will be equipped with the best information to determine necessary Alzheimer’s research funding levels in each year leading up to 2025 to achieve the primary goal of the National Plan to Address Alzheimer’s Disease, creating a means to prevent and effectively treat Alzheimer’s disease.

Update on the HOPE for Alzheimer's Act (S. 709/ H.R. 1507)
The HOPE for Alzheimer's Act (S.709/H.R. 1507) continues to collect bipartisan support this Congress. We are pleased to report that HOPE now stands at 211 cosponsors in the House of Representatives, with another 32 cosponsors in the Senate.  Thank you to all who continue to advocate on the importance of this legislation.

Record $122 million increase for Alzheimer's disease signed into law
At the urging of the Alzheimer's Association and its more than 600,000 advocates, the funding bill signed into law on January 17, 2014, by President Obama contained an unprecedented $122 million increase for Alzheimer's research, education, outreach, and caregiver support.

Read full press release here

National Plan to Address Alzheimer's Disease
On May 15, 2012, the first ever National Plan to Address Alzheimer's Disease was released by the Administration with the important goal of preventing and effectively treating Alzheimer's by 2025.  Your efforts got us here.  You signed the petition, advocated on Capitol Hill, and told officials that Alzheimer's couldn't wait.  Your voices were heard.  Thank you!

View the National Alzheimer's Plan video here
Read the National Alzheimer's Plan here


Advocacy Priorities

  1.  Increase the commitment to Alzheimer's research
            -- Call your members of congress and ask for increased funding
  2.  Improve access to diagnosis and care planning
         -- View information about the HOPE for Alzheimer's act below 

Read the 2014 Federal Public Policy Priorities here
View and download Federal Public Policy Priorities visual aid here



Alzheimer's Accountability Act
The Alzheimer's Accountability Act 
(H.R. 4351/S. 2192) represents a bipartisan effort to ensure that Congress is equipped with the best possible information to set funding priorities and reach the goal of the National Plan to Address Alzheimer's Disease to prevent and effectively treat Alzheimer's by 2025. 

View the Alzheimer's Accountability Video here
View the Alzheimer's Accountability Act fact sheet here
 

HOPE for Alzheimer's Act
The Health Outcomes, Planning, and Education (HOPE) for Alzheimer's Act (S.709/H.R.1507), was introduced to improve diagnosis of Alzheimer's disease and increase access to information on care and support for newly diagnosed individuals and their families - providing essential support for those facing this devastating, debilitating disease.

View the HOPE for Alzheimer's Act video here
View the HOPE for Alzheimer's Act fact sheet here 


Other Information

Advocacy Basics

  • Advocate Guide - This document is a guide to advocates who attended our Alzheimer's Advocacy Forum, but it also serves as a great resource for new advocates. 
  • Collateral/Visual Aid - This document provides a graphical view of the need for Alzheimer's research funding.  It is intended to be shown to elected officials during in-person meetings.
     

The Economics of Alzheimer's Disease
To help you better communicate with elected officials about the critical need for additional resources for Alzheimer's research, the Alzheimer's Association has developed a handout document (and a Spanish language version) emphasizing our key message, "Alzheimer's is the costliest disease in America and is set to increase like no other."

View The Economics of Alzheimer's Disease video here
View The Economics of Alzheimer's Disease handout here 

 

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