As many as half of individuals who meet the specific diagnostic criteria for dementia have never received a diagnosis. An early and documented diagnosis when coupled with access to care planning services leads to better outcomes for individuals with Alzheimer’s as well as their caregivers. Furthermore, documentation in the individual’s medical record is critical for care coordination and is necessary for health care providers to address complications in the management of other chronic conditions, such as heart disease and diabetes.
The HOPE for Alzheimer's Act would improve diagnosis of Alzheimer's disease and increase access to information on care and support for newly diagnosed individuals and their families - providing essential support for those facing this devastating, debilitating disease. It would also ensure that an Alzheimer's or dementia diagnosis is documented in the individual's medical record. This latest version of the HOPE for Alzheimer’s Act is also consistent with recommendations made in the first-ever National Plan to Address Alzheimer’s Disease, released by the Department of Health and Human Services in 2012.
The HOPE for Alzheimer's Act was reintroduced in the 113th Congress by Senators Debbie Stabenow (D-MI) and Susan Collins (R-ME) and Representatives Edward Markey (D-MA) and Chris Smith (R-NJ).
HOPE for Alzheimer's Act Resources: If you had the opportunity to speak to a member of Congress about this legislation, please report it at www.alzadvocacy.com