Alzheimer's Association
 Advocacy Federal Update Header JPEG

"Alzheimer's can't wait and families won't forget"

This was the sentiment expressed by Harry Johns, President and CEO of the Alzheimer's Association during the second meeting of the Advisory Council on Alzheimer's Research, Care and Services held January 17-18 in Washington D.C. Charged with providing recommendations to the Department of Health and Human Services (HHS) for the development of the National Alzheimer's Plan, the Advisory Council put forward goals and strategies to change the trajectory of Alzheimer's disease.

With as many as 5.4 million Americans living with Alzheimer’s and nearly 15 million friends and family members providing  care for them, the need to develop an "urgent, achievable and accountable strategy" was on the minds of Advisory Council members. Alzheimer’s is the sixth leading cause of death and the only one among the top ten without a way to cure, prevent or even slow its progression.

HHS recently outlined its timetable for the development of a National Alzheimer’s Plan, with the first draft targeted for mid-February and a final plan slated to be released in late spring. Advisory Council members shared their recommendations on what they believe must be included in an effective national strategic plan touching on areas from funding for research to clinical care to long term services and support.

The next in-person meeting of the Advisory Council meeting is scheduled for April 17, but you can read the current Draft Framework for the National Alzheimer’s Plan right now. And please share your feedback on the draft with us.

It's your turn!

Members of Congress have heard the voices of people from across the country, but now they need to hear from you in person. Join a nationwide group of advocates on April 23-25, 2012, in Washington, D.C., for the Alzheimer's Association® Advocacy Forum. Together we'll take our message directly to Congress and fight for a future without Alzheimer's disease.  Visit  alz.org/forum to register.


Sincerely,
Robert Egge
Vice President, Public Policy
Alzheimer's Association

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